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hiphop5554

2y ago

Finally Heard by a Doctor for My EDS Pain

So todau was the first time that I actually felt heard by a doctor. I went to a specialist for EDS and she totally listened to me! One of the biggest struggles with an invisible illness is feeling ignored by everyone because they just don't understand what pain I'm in as they can't see it. She diagnosed me with hypermobile EDS and said she thinks she can help the crippling pain I've been in. I haven't been able to do any of my daily activities because of the constant pain. She also prescribed me a wheelchair to help me move around better. I'm so thankful. How is everyone else's treatment going???

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marisa

2y ago

Wow that’s great news! Any treatments she suggested that you can share?
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CT1409

2y ago

Wow congrats! That's awesome! It really does feel great on the rare occasions that we find good doctors
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EternalEmber

2y ago

My rheumatologist only said they could prescribe be duluoxetine for the pain but since it is also an anti depressant as well, I can't take it. They said it would be useless to diagnose me since there isn't a cure or any treatments
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ashdolly55

2y ago

wow!! im so happy you got a chair. so many drs are reluctant to give heds a wheelchair/any mobility device.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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