Living with Elhers Danlos Syndrome: Seeking Advice and Support

I have an interventional pain management doctor and am considering returning to physical therapy again soon. I manage with a lot of splints and braces

Hello! I’ve found that physical therapy has been helpful with managing my symptoms. I’ve also worked with a psychologist that specializes in pain and have found that to be helpful in coping with living with chronic pain. I hope you are able to find treatments that work well for you!

hey Pea! first of all i’m sorry i know diagnoses can be a lot to take in and process but it’s good you have a name for it so you can get care for it 💕 i honestly still struggle with a lot of chronic pain but i do pt every week to strengthen the muscles around my joints which has really decreased my dislocations. also staying slightly but not overly active helps my EDS and other conditions. I take some meds for muscle spasms and even just taking magnesium malate can help a bit. i am getting in with a pain management specialist so i can let you know if that’s helpful! i’d love to continue chatting about both of our journeys and experiences! do you deal with pain everywhere and are dislocations a big issue?

Got diagnosed with EDS very recently and I don't know either. Commenting to see what other people say. 😅