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Tammika

2y ago

Living with a Chronic Condition: How it Affects My Daily Life

How does this condition effect your daily life?

Your answer

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Purple.Froggy

1y ago

I didn’t know I had NF until I was 17, I have minimal spots and no external fibromas. I pretty much go on about my day normally but have to stop and hold my breath for a bit when I bump into something and it hits one of my fibromas in my arm or something lol (ouch). I have one in my hand and I hit it against my steering wheel by accident all the time. But for daily life, it doesn’t affect it much aside from that. Sometimes I’ll get strange pulsing nerve pain in concentrated areas but usually that only lasts max 10 mins and then it goes away
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Bova

2y ago

@Amanda2014 And Tammika I Never Been Seen By And Doctor For My NF My Sister Have NF All Over Body I Have A Few That Showing My Son Have It On His Bones He Had Many Surgeries To Try And Fix Something But It Didn’t Work He Have Some NF On His Body
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Heidi73

2y ago

I hurt a lot of the time I have fribromas on my feet and I am on my feet a lot of time.
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Amanda2014

2y ago

It effects a lot...... I've been picked on cause I have NF1
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Tammika

2y ago

sorry you get picked on. People are mean 😥

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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