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Tammika

723d

How does this condition effect your daily life?

Top reply
    • Purple.Froggy

      662d

      I didn’t know I had NF until I was 17, I have minimal spots and no external fibromas. I pretty much go on about my day normally but have to stop and hold my breath for a bit when I bump into something and it hits one of my fibromas in my arm or something lol (ouch). I have one in my hand and I hit it against my steering wheel by accident all the time. But for daily life, it doesn’t affect it much aside from that. Sometimes I’ll get strange pulsing nerve pain in concentrated areas but usually that only lasts max 10 mins and then it goes away

    • Purple.Froggy

      662d

      I didn’t know I had NF until I was 17, I have minimal spots and no external fibromas. I pretty much go on about my day normally but have to stop and hold my breath for a bit when I bump into something and it hits one of my fibromas in my arm or something lol (ouch). I have one in my hand and I hit it against my steering wheel by accident all the time. But for daily life, it doesn’t affect it much aside from that. Sometimes I’ll get strange pulsing nerve pain in concentrated areas but usually that only lasts max 10 mins and then it goes away

    • Bova

      719d

      @Amanda2014 And Tammika I Never Been Seen By And Doctor For My NF My Sister Have NF All Over Body I Have A Few That Showing My Son Have It On His Bones He Had Many Surgeries To Try And Fix Something But It Didn’t Work He Have Some NF On His Body

    • Heidi73

      723d

      I hurt a lot of the time I have fribromas on my feet and I am on my feet a lot of time.

    • Amanda2014

      723d

      It effects a lot...... I've been picked on cause I have NF1

      • Tammika

        723d

        @Amanda2014 sorry you get picked on. People are mean 😥

        • Amanda2014

          723d

          @Tammika just cause I have NF1

        • Amanda2014

          723d

          @Tammika thank-you I was picked on in middle school up to high school

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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