having such a rare disorder in Nerofribrometosis(NF2) sometimes makes me feel so isolated. it's something I wish more people knew about so I had someone to relate and talk to... I grow non cancerous tumors along my nerves.... Elephant man had a serve form among his aliments.
well I get tumors throughout my body, they look like purple moles and usually aren't bad. But I do have what they call a mask in my optic kasim(behind my eyes) which causes me to have my sevre migraines
oh, migraines are terrible, I'm sorry they're coming from your NF. I imagine there's a lot that can happen with nerve tumors. You can always talk to me about whatever you want. I don't have NF but I'll always listen!
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Tuesdayk9
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having such a rare disorder in Nerofribrometosis(NF2) sometimes makes me feel so isolated. it's something I wish more people knew about so I had someone to relate and talk to...
I grow non cancerous tumors along my nerves.... Elephant man had a serve form among his aliments.
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SmileySnail
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision