Looking for experiences with Orilissa for endometriosis

I am not there yet, but I feel my GYN will recommend it at some point. I wouldn’t take it though I know everyone is different. I have heard nothing but bad things from the Facebook support group I’m in about it. I hear mostly of that it didn’t help and left irreversible side effects though I don’t remember all of what, I know it all wasn’t good. 😥

I was on the trial portion of Orilissa, it caused unreversible Osteopenia, and was discontinued. Most Endo advocates are against its use as it's not really a cure.

I've been on orilissa for almost 3 months now. I haven't had a single period, and I was also weary about the side effects because I don't need my depression worsening. It was fine for the first 2 months, then I got covid and I'm not sure if that made a difference , but my pain returned and my doctor started me on muscle relaxers in addition to orilissa. I will tell you it was a nightmare getting it approved by my insurance company but it could be easier for others.

I was just prescribed this today one week post-op…. Will update later about how it goes

For me, it made me worse and ate up my calcium and had to stop taking it. I have to take calcium supplements now because it's not reversible. I hear it does work for a lot of people though so I'd say just pay attention to your body.