See Alike in...

Alike App

Browser

frenchieLulu

836d

i just got recommended orilissa for my endometriosis. has anyone had experience with orilissa? if so what was your experience?

Top reply
    • MexicanToasty

      835d

      I am not there yet, but I feel my GYN will recommend it at some point. I wouldn’t take it though I know everyone is different. I have heard nothing but bad things from the Facebook support group I’m in about it. I hear mostly of that it didn’t help and left irreversible side effects though I don’t remember all of what, I know it all wasn’t good. 😥

    • MexicanToasty

      835d

      I am not there yet, but I feel my GYN will recommend it at some point. I wouldn’t take it though I know everyone is different. I have heard nothing but bad things from the Facebook support group I’m in about it. I hear mostly of that it didn’t help and left irreversible side effects though I don’t remember all of what, I know it all wasn’t good. 😥

    • OddlyVan

      835d

      I was on the trial portion of Orilissa, it caused unreversible Osteopenia, and was discontinued. Most Endo advocates are against its use as it's not really a cure.

    • blairbee

      835d

      I've been on orilissa for almost 3 months now. I haven't had a single period, and I was also weary about the side effects because I don't need my depression worsening. It was fine for the first 2 months, then I got covid and I'm not sure if that made a difference , but my pain returned and my doctor started me on muscle relaxers in addition to orilissa. I will tell you it was a nightmare getting it approved by my insurance company but it could be easier for others.

    • peartree

      836d

      i was offered orilissa and after some research i decided not to take it. the risks to me were not worth it. a lot of people reported severe suicidal ideation and permanent ovary dysfunction. lupron is the injectable version, please beware if your provider tries to tell you they are different medications, they aren't!

      • Emmabee

        836d

        @peartree thank you! They wanted to put me on that pre surgery

    • WhatADay

      836d

      I was just prescribed this today one week post-op…. Will update later about how it goes

    • Mrs.Rainbow6

      836d

      For me, it made me worse and ate up my calcium and had to stop taking it. I have to take calcium supplements now because it's not reversible. I hear it does work for a lot of people though so I'd say just pay attention to your body.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion