Starting Orlissa: Looking for Tips and Advice

Orilissa is a temporary fix a full hysterectomy with no hormone replacement for one year after the surgery is the only long term fix and most doctors have no clue about endometriosis it is frustrating. My wife battled endometriosis for five years it moved to her bladder it made her a.d.d worse she is much happier now and healthier now but the hot flashes suck lol and zertac has dryness issues for a lot women she went allegra.

I’ve been on Orilissa for about a year. It stopped my pain and my period but my hair started falling out in clumps, I’ve gotten lots of infections I’ve never had before (even shingles), my bones and joints hurt (I was recently diagnosed with inflammation of rib cartilage and bones) very vitamin D deficient and I’m super emotional and depressed. So a few weeks ago I went off the Orilissa for ten days and I started severe pelvic pain again. So I’ve started taking it again snd I’m STILL having the pelvic pain (although it’s moderate) and the rib & back pain are back. But without Orilissa, I feel like I’m going through child labor every day (I’ve been through labor & endo feels pretty much the same). So it’s the lesser of evils for me. I’m having a total hysterectomy In 3 weeks and I’m actually really looking forward to it. Orilissa has worked for me for months but it’s been at a price

I’ve been on it longer than the recommended time and it’s been great for me. The twice a day dose was too much for me and gave me side effects and the once a day dose didn’t help enough, so my doctor has me taking one pill from the twice a day dose and it’s been perfect. Make sure you communicate with your doctor about your symptoms and side effects throughout your journey. And you may feel a little nauseous at first but that’s normal. Also, I don’t know if it’s just me, but I think they made the pills difficult to get out of the package, especially for people who already deal with chronic pain, so I take mine out of the cardboard and just leave them in the push through sleeve to make it easier.

Make sure that you take a few days to adjust to it! It made me really sick for the first few days that I tried it, so give yourself time to adjust!