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Sonder0723

818d

I don’t feel like anyone in my life actually understands how sick I am. I think my husband understands the best because he sees me every day and helps me when I’m having a flare, but I still feel like sometimes he forgets that there’s things I can’t do when I’m having a flare or things I just can’t do at all anymore. My parents know that I’m not doing well but I don’t think they understand how bad it is and I don’t know how to tell them without either scaring them or them just not believing med. My sister doesn’t know anything and she doesn’t ask either.

Top reply
    • wise

      817d

      The people closest to you are gonna come to understand how poorly you're doing whether they want to or not. Someday it's going to affect them and they can't pretend to not know or understand what's happening. Lean on your husband, he's supposed to support you in any way he can, just like you do the same for him. Of course he's gonna forget some stuff, he's not actively living your experience and chronic pain and illness isn't a consistent, linear experience anyway. The most important thing is whether or not he listens when you explain a problem to him. You'll find your support system and you'll be okay, I promise 💕

    • Peachy_Keen

      817d

      I understand this completely. It is one of the most heartbreaking things to face when going through this. I feel like no one ever believes that I’m sick and say I “cry wolf” about stuff. Just know you’re not alone and we’re all here and understand what you’re going through ❤️

    • Tyle_r

      817d

      I’m in the same boat, the only person who completely understands how I’m feeling is my mom, and she deals with the same thing every day. My fiancé knows but he keeps comparing his pain to mine and it really upsets me. He’ll also hug me to tightly during flares and when I say it hurts, he’ll get upset at himself. Does anyone deal with this with there significant other?

    • KJWolf

      817d

      😥

    • warriormotheroftwins

      817d

      🙏🙏🙏🙏

    • wise

      817d

      The people closest to you are gonna come to understand how poorly you're doing whether they want to or not. Someday it's going to affect them and they can't pretend to not know or understand what's happening. Lean on your husband, he's supposed to support you in any way he can, just like you do the same for him. Of course he's gonna forget some stuff, he's not actively living your experience and chronic pain and illness isn't a consistent, linear experience anyway. The most important thing is whether or not he listens when you explain a problem to him. You'll find your support system and you'll be okay, I promise 💕

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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