Feeling Misunderstood with Chronic Illness

I understand this completely. It is one of the most heartbreaking things to face when going through this. I feel like no one ever believes that I’m sick and say I “cry wolf” about stuff. Just know you’re not alone and we’re all here and understand what you’re going through ❤️

I’m in the same boat, the only person who completely understands how I’m feeling is my mom, and she deals with the same thing every day. My fiancé knows but he keeps comparing his pain to mine and it really upsets me. He’ll also hug me to tightly during flares and when I say it hurts, he’ll get upset at himself. Does anyone deal with this with there significant other?

😥

🙏🙏🙏🙏

The people closest to you are gonna come to understand how poorly you're doing whether they want to or not. Someday it's going to affect them and they can't pretend to not know or understand what's happening. Lean on your husband, he's supposed to support you in any way he can, just like you do the same for him. Of course he's gonna forget some stuff, he's not actively living your experience and chronic pain and illness isn't a consistent, linear experience anyway. The most important thing is whether or not he listens when you explain a problem to him. You'll find your support system and you'll be okay, I promise 💕