Frustrated with Fibromyalgia Diagnosis

I’m so sorry. I am going through a very similar experience and i wouldn’t wish this upon ANYBODY. I don’t have a lot of advice because I’m learning how to navigate this myself, but just know you’re not alone and I’m rooting for you ❤️ every day that you can get through and survive is a win right now, whether it feels like it or not.

i’m sorry :( my only advice is to try to get routine screenings. i’ve had pain since i was in elementary school (i’m 17 now) and the first time something actually showed up was recently: i went to a rheumatologist and he ordered x-rays that showed early arthritis, a cbc that showed low wbc (among other related things), and the crp test that was high for the first time. i still qualify for the fibromyalgia diagnosis as well though. i know it sucks having a diagnosis that is basically just shorthand for “you’re in pain and we don’t know why” but it’s very valid :(

I feel the same pain. Sorry you are suffering. Fibromyalgia DX is a big umbrella DX when they can’t figure out other things. That said it is truly a pain disorder and is recognized by the medical association. Keep looking for more answers. Do not give up!! Someone else may pinpoint exactly what is going on so keep asking for help.

I was misdiagnosed with RA over 10 yrs ago. Come to find out I have fibromyalgia. Lots of people are getting misdiagnosed. I'm on Cymbalta 60mg 2 times a day. Maybe try Lyrica?