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DeepThinker99

380d

hi all, just officially got diagnosed with fibromyalgia and I’m feeling really sad about it. I’ve been in chronic severe pain all my life and am now just getting a diagnosis at 22 years old. I feel too young to be feeling like this and having the problems I do. My doctor was talking to me about my life quality and he explained it as the pain will never go away and will probably get worse. He put me on Lyrica and said that will push the pain to the back of my mind but it will always be there and it made me really sad because I thought I would be able to at least not be in pain for at least a few hours out of the week. I’ve already been doing all the pain management techniques for years but I just want it to go away for at least a little bit. I’m glad to have a space where others can relate. Pls drop any fibro tips if you have some♥️♥️♥️

Top reply
    • 10ak01

      377d

      hi babes!! i was in a similar boat, getting a late stage diagnosis after being in pain my whole life. it honestly takes time to come to terms w the fact that our bodies are going to be in more pain than the average person. it gets easier w time ❤️

    • The_Pained_Dinosaur

      377d

      Hey there, I'm in my early '30s now and was only recently diagnosed (in the last couple of years), though my doctor and myself believe that I've had it since at least my mid-teens. TIPS: 1) Heat/cold (ice) are your friends. Some people react better to heat and some react better to cold when your various body parts are hurting. Personally, cold cranks my pain up multiple levels, whereas heat helps at least sometimes. 2) Topical lidocaine and tiger balm are even better friends than heat and cold if you can stand them. I tend to use lidocaine, but I used to use tiger balm before my skin decided suddenly that it would be allergic to it (by trial and error I found out that I am now allergic to topical menthol). Lidocaine numbs the pain because that's what lidocaine does, and tiger balm helps relax muscles. 3) Massages. Some people enjoy massages that you get from other people, but be sure to let them know your health conditions first and also be aware that sometimes it can make the pain worse. However, you can also get handheld massagers or massaging matt/seats. 4) Always make sure it's okay to take medications, even over the counter ones, before taking them (some over-the-counter medications as well as supplements and vitamins can interact with other medications). That being said, ibuprofen works really well for reducing inflammation. It doesn't always help the pain, but sometimes a reduction in the inflammation itself helps reduce pain.

    • 10ak01

      377d

      hi babes!! i was in a similar boat, getting a late stage diagnosis after being in pain my whole life. it honestly takes time to come to terms w the fact that our bodies are going to be in more pain than the average person. it gets easier w time ❤️

    • LemonSnicker

      380d

      It’s definitely a hard thing to hear and find out about even when you’ve been dealing with the symptoms for years already! I was diagnosed at 15 or 16, and the doctor didnt even want to call it fibromyalgia because I was “young”. You learn to manage it though! Rather through medication or your own tricks! Personally I see fibro as a little gremlin that shows up sometimes out of nowhere and starts pressing all the buttons, and I just let it run its course, lol.. maybe it’s just me but personifying my conditions sometimes makes them easier to deal with, and easier to live with in the long haul. You have every right to be upset and confused why this is happening at your age! It definitely doesn’t feel fair, when all you want to do is enjoy life like others your age, but it’s still possible! We climb a bigger mountain, but we get better at it along the way!

    • Belugabear

      380d

      I’m 22 and was diagnosed at 19 so I totally understand that feeling. But it’s important to know there are things you can do! I kept pushing and discovered my back pain was due to a spine abnormality missed on 5 MRIs! I was also on lyrica for a long time. It helped my pain but I gained 100 pounds on it and couldn’t concentrate on anything. I’m now off of it because I did ketamine infusions, they got rid of 75% of my pain at least. You have options! If you have questions about what I did to feel better message me any time

      • Chesbro99

        377d

        @Belugabear ketiamien can be for pain?

        • Belugabear

          377d

          @Chesbro99 yes! It’s not a common use yet but it’s gaining popularity and works soooo well!!!

    • SlothMomma94

      380d

      I just got my diagnosis 2 years ago at 26 after suffering in silence because whenever I brought it up no one believed me. It was such a relief because I finally had found a doctor that sat a listened to how I was suffering everyday

    • Red914

      380d

      I remember how much of a gut punch getting that diagnosis was. I was in my mid twenties. One the one hand, I was glad to have an answer. I had been through so many tests. But on the other hand, knowing that this is it, chronic pain for the rest of my life, and no real understanding of why and no real concrete treatment methods. I would recommend looking into central and syndrome and the possible link with trauma response.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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