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qveenofthecastles

725d

what medicine do you take for your Fibromyalgia?

Top reply
    • Pearline

      700d

      I combine Lyrica and Arthritis pain relief plus warm baths and heating pads.

    • Pearline

      700d

      I combine Lyrica and Arthritis pain relief plus warm baths and heating pads.

    • Red914

      702d

      Gabapentin, originally prescribed for my migraines but it helps with nerve pain, baclofen for pain, trazodone for sleep.

    • cardeg

      711d

      Gabapentin, cymbalta, Flexeril for sleep not muscle relaxer...for 20 years this combo has worked well for me.

    • LadyTauriel

      711d

      I'm on gabapentin. 2400mg a day.

    • History.and.cats

      711d

      I've just started a new medication, amitriptyline, I don't know if it works yet but hopefully it does

      • qveenofthecastles

        703d

        @History.and.cats let me know!

    • wombatz

      712d

      I was take pregabalin (Lyrica) and have had far fewer side effects than the first medication i was put on. some of my other psych meds are also beneficial that i was already on

    • Brittany.Sharp

      713d

      Thanks for all the information, I'm going to talk to my doctor.

    • ginkgowink

      714d

      I tried duloxetine which didn’t help me and was difficult to come off of. I took tramadol as needed for a while, which helped but not amazingly. It may have caused low respiration at night, and it can’t be taken with naltrexone, so I stopped it. I am now on low dose naltrexone (LDN). I just started about a month ago, so I can’t say much about it yet as it normally gets better with time (some patient even describe continued improvement after a year or two on the same dose). But I am noticing an impact on my fatigue!!! I’ve felt more “alive” and able to do more things than I normally can. I’ve been able to be a bit more active, and I don’t feel like I’m pushing myself until the physical fatigue comes rolling in. It’s hard to describe, but I used to feel all over super fatigued when I did much, feeling mentally fatigued and really overwhelmed and tired and like everything around me was turning to syrup. Now I’m not feeling that feeling as much, I can just tell my body physically needs a break - like I’ve walked too much for the day or something. Anyways, I’m feeling hopeful about LDN now. I think it will be giving me a better quality of life. We’ll see if it helps much with pain. There’s a lot of promising research about LDN for fibro, ME/CFS, POTS, even Crohn’s and SIBO. And it can be stopped or dose changed at any time without withdrawals 🥹❤️ so it feels like an amazing option that’s really worth looking in to.

      • qveenofthecastles

        713d

        @ginkgowink amazing!! I may be trying that next then

      • ginkgowink

        714d

        @ginkgowink I also take supplements - turmeric, vit D, magnesium, things for sleep, sometimes CBD. Nothing is super obviously helping, but cumulatively I’m doing better than I was before I started them. I’m going to start IBgard for IBS and hopefully CoQ10 (in form of ubiquinol) which those with ME/CFS often take to help with energy production. We’ll see 🤷‍♀️

        • Doglover25006

          713d

          @ginkgowink my doc just started me on CoQ10 but just like a regular pill from the shelf at the grocery store pharmacy. What is ubiquinol? Is that different and is it better?

    • Hollyd1622

      719d

      I’ve tried savella, lyrica, gabapetin, duloxetine. None were right for me. It wasn’t worth The side effects. I take cbd oil and when I’m really bad thc gummies

    • thisladyisacat

      720d

      Only cannabis helps my nerve pain. Opioids are my next option, but usually something that's worst case scenario, rather than a "treatment", per say.

    • Ameg

      721d

      Cymbalta and Gabapentin for about 10ish yrs now

    • Lady_Dreadful

      721d

      Honestly even my Dr agrees nothing really helps medication wise. I do find ingesting not smoking or vaping.. THC helps. My Dr gas advised to avoid CBD. (Medical card)

      • qveenofthecastles

        715d

        @Lady_Dreadful why avoid CBD?

    • AlyxRiley

      721d

      Just started gabapentin myself and it's only been a few days so nothing spectacular has happened as of yet. Was on Cymbalta before this and it didn't help much at all even at the super high doses.

    • whalesocks

      721d

      Duloxotene/cymbalta

    • SmartSysta

      722d

      Pregabalin because it doesn’t make me swell up like gabapentin.

    • Doglover25006

      724d

      https://www.iheart.com/podcast/256-fibromyalgia-podcast-30930174/episode/cutting-edge-research-on-fibromyalgia-with-dr-jarred-younger-51135198?cmp=ios_share&sc=ios_social_share&pr=false A fibromyalgia coach is interviewing that doc about his low dose naltrexone research in this podcast episode

    • TeaThyme4Alice

      724d

      I alternate different pain relievers because they all process differently. Tylenol, gabapentin, and CBD. I am also on duloxentine for daily medication which targets nerve function and helps depression.

    • RJT

      724d

      I use Nabumetone 1500 mg a day

    • mtngoat

      724d

      Just CBD/THC right now.

    • Pixiemom88

      725d

      I take gabapentin. Cymbalta and muscle relaxer n nsaid. I hate the weight gain on gabapentin though

      • coffeemama

        724d

        @Pixiemom88 Gabapentin hasn't caused me to gain weight. I guess it's different for everyone.

      • qveenofthecastles

        724d

        @Pixiemom88 you're on Gaba and Cymbalta?

        • Pixiemom88

          714d

          @qveenofthecastles yes

    • Doglover25006

      725d

      Lyrica and low dose naltrexone plus some vitamins and supplements

      • Pixiemom88

        725d

        @Doglover25006 do u mind if I ask how naltrexone helps and what vita

        • Doglover25006

          724d

          @Pixiemom88 it’s an off label use. Naltrexone is fda approved for I forget what conditions, but being researched for fibro treatment. The theory is that fibro could **not is** cause by inflammation in the brain. Naltrexone is the only anti-inflammatory that can cross the blood brain barrier. I take 25mg because that’s cheap at the regular pharmacy. 5-10mg is the therapeutic dose for fibro where as for other conditions people take hundreds of mg. Anything lower than the 50mg pills that I break in half need to be made at a compounding pharmacy which is super expensive.

    • coffeemama

      725d

      I take gabapentin. Its very helpful. I still have quite a bit of pain but it has definitely made a difference.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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