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I couldn't add unspecified autoimmune disorder, I just wanted to point out I working really hard on tracking down this most likely autoimmune disorder I have. I'm going to a med school so I am trying to see the best doctors in my area. ah some days it just feels like running it circles. im tired đ¤Ł
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Diffuse connective tissue disease
Postural Orthostatic Tachycardia Syndrome (POTS)
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Awe I am sorry you are searching for an answer and diagnosis, thatâs not easy at all. It sucks to have no answers. But, nevertheless I am glad itâs not eds for you, while I know itâs a âgoodâ feeling to have some sort of answer I have not found much to help in dealing with ehlers danlos and related complications, other than knowing the âwhyâ. I truly hope that you do find an answer though, and hopefully some kind of help or relief with that as well.
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I was told no I don't have that. I wish I did lol. I don't have any of the signs of it. I don't think I'll bother with genetic testing since it takes so long. I've had 3 doctors do movement tests on me and I failed each one that would of proved otherwise.
For years we were trying pinpoint an autoimmune disorder, but were led to a connective tissue disorder that in a lot of ways acts similar to autoimmune. I was diagnosed with ehlers danlos syndrome. Maybe this could be a possibility for you?
â This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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