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RandaRedPanda

660d

Hello, I just wanted to say hi. I am new to this app. I have been sick for 4 years and have had a ridiculous time trying to find out what is wrong with me. I have been to Mayo which really was no help, very disappointed. But I keep trying to move forward. Hope I can be of some help to someone out there.

    • Wondercell

      658d

      Wow same! I've been on my search for 6 yrs. While I have found some answers I'm doing it on my own because I don't have the right physician yet so of course that limits me because I'm not a doctor. It has helped me greatly though to get on groups that have the same conditions as I do on things like Facebook. I would be glad to share anything I've learned I'm most probably have adrenergic pots and Mast Cell Activation Syndrome. I probably have a couple of other things too I'm suspicious of connective tissue disorder and possibly one other thing but I did finally get a doctor that understands dysautonomia to do some testing in October so if I can hang on till then I will be grateful.

    • JayHey

      659d

      Same here can’t find anything wrong but always sick it’s crazy

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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