No One Believes Me: How Do I Cope?

Hey all x im new on here and I completely get where ur coming from. I've been in pain for years. I've told the doctors about the pressure points in my lower back, and that when they are pressed i get a shooting pain downwards and my legs completely give way. I was diagnosed last year with fibromyalgia. Almost 8 years later x

My family doesn’t believe me. My sister is a freaking doctor. She wants to see a genetic test or a blood test for heds.I have explained it a million times. I have given up. I don’t bring it up anymore. I do have a very supportive boyfriend. That helps a lot. For a long time no doctor believed me until I got into the Tulane Eds clinic. My pain management doctor left and I have an appointment with a new one on March 8 I’m hoping he believes me. I’m on a patch you are not supposed to go cold turkey off of. I’m scared he will blow me off like most doctors. Sorry for the rant

Not even my boyfriend believes me and refuses to take care of me or help. I've become an inconvenience and problem he wishes would just go away.

You absolutely aren't alone in feeling that way, it's incredibly hard to explain just how severe these conditions are to people who don't experience them, and feeling like they don't believe you is something that I completely get. Just remember that, even if we are just a lil online community, that there are people who understand you :)

It’s called gaslighting when you experience this. Like others said above it’s very common but still not right. You need find the right medical team that won’t do this and we’ll with family that’s always a tough one. I have leaned to stand my ground with them. The longer from my diagnosis the easier this has been for me. My entire life my family knew I had a ton of health issues that were never figured out. Now that I have children my oldest has many of my issue’s because I was undiagnosed while pregnant. They somehow believe my child but still give me a hard time. I have MCAS, HIT ( DAO deficiency) and a a few other diagnoses.

Everything gets explained away as anxiety for me. It's truly frustrating

You aren't alone. It is a common thing EDSers and other people with chronic illnesses experience, myself included. It is a hard thing to deal with, and I still struggle with it. What makes it easier for me is reminding me that I'm not alone in this, and taking comfort in my support group