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Eugenie

866d

I have a lot of trouble figuring out exactly what kind of doctor I should see for my EDS and POTS, especially since it's so rare to find ones that know things about my conditions. Where and what type of doctor should I be looking for?

Top reply
    • Messymexi

      865d

      Also take a look at the providers on https://www.ehlers-danlos.com/ I found a lot of doctor's on there even if they weren't in my state

    • Messymexi

      865d

      Also take a look at the providers on https://www.ehlers-danlos.com/ I found a lot of doctor's on there even if they weren't in my state

    • Chrys

      865d

      All of what’s been said above, as well as an orthopedic for EDS. They’ll help make sure your joints stay in check and will be able to aid in any bone, joint, or tendon issues that may arise.

    • Acacia

      865d

      Agree to the person above, and for POTS at least you should see either a cardiologist or neurologist who knows about POTS at the VERY LEAST. Or someone who specializes with dysautonomia

    • Elisa

      866d

      Unless you can find a clinic or doctor that specializes in EDS, then you need multiple doctors for your different problems. It's frustrating, I know.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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