Join a Community That Understands You

Get answers from those who share your health journey

Explore Over 11,000+ Conditions, Medications, and Symptoms.

Get a personalized feed by signing up for free.

All Posts

Eugenie's Post

Eugenie

Updated 9mo ago

Need help finding a doctor for EDS and POTS

I have a lot of trouble figuring out exactly what kind of doctor I should see for my EDS and POTS, especially since it's so rare to find ones that know things about my conditions. Where and what type of doctor should I be looking for?

Can you help? connect today

Elisa

Unless you can find a clinic or doctor that specializes in EDS, then you need multiple doctors for your different problems. It's frustrating, I know.

Acacia

Agree to the person above, and for POTS at least you should see either a cardiologist or neurologist who knows about POTS at the VERY LEAST. Or someone who specializes with dysautonomia

Chrys

All of what’s been said above, as well as an orthopedic for EDS. They’ll help make sure your joints stay in check and will be able to aid in any bone, joint, or tendon issues that may arise.

Messymexi

Also take a look at the providers on https://www.ehlers-danlos.com/ I found a lot of doctor's on there even if they weren't in my state

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Free unlimited access

to all community content

Find others who are

medically similar to you

Pose questions and join

meaningful discussions

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities Support

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines Moderation Process