Need help finding a doctor for EDS and POTS

I have a lot of trouble figuring out exactly what kind of doctor I should see for my EDS and POTS, especially since it's so rare to find ones that know things about my conditions. Where and what type of doctor should I be looking for?

Your answer

Messymexi

2y ago

Also take a look at the providers on https://www.ehlers-danlos.com/ I found a lot of doctor's on there even if they weren't in my state

Chrys

2y ago

All of what’s been said above, as well as an orthopedic for EDS. They’ll help make sure your joints stay in check and will be able to aid in any bone, joint, or tendon issues that may arise.

Acacia

2y ago

Agree to the person above, and for POTS at least you should see either a cardiologist or neurologist who knows about POTS at the VERY LEAST. Or someone who specializes with dysautonomia

Elisa

2y ago

Unless you can find a clinic or doctor that specializes in EDS, then you need multiple doctors for your different problems. It's frustrating, I know.

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