Suspected EDS and POTS - What's Next?

I haven't been diagnosed yet, but two doctors have suspicions I have EDS and POTS. What do I do now?

Your answer

SylviaIris13

2y ago

That's the stage I'm at right now nobody wants to diagnose but they are chasing their tails to treat it. I wish it was easier to do genetic testing :/

Memsalie

2y ago

ugh me too 💖 good luck to you and your quest for diagnosis

Keikochan

2y ago

I'm in the same boat. Just did an echocardiogram and Holter to determine POTS for sure and I'll see a genetics Dr next month

MJ_PDX

2y ago

Geneticist is a great way to go but if you don’t have access to that, a PT, cardiologist, or PCP can help get the process started and perform some small tests.

MangoPeach

2y ago

Make an appointment with a geneticist

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