See Alike in...

Alike App

Browser

Suspected EDS and POTS - What's Next?

Memsalie

701d

I haven't been diagnosed yet, but two doctors have suspicions I have EDS and POTS. What do I do now?

4

5

5

Ehlers-Danlos Syndrome (EDS)

View all
Top reply
    • Memsalie

      698d

      @SylviaIris13 ugh me too šŸ’– good luck to you and your quest for diagnosis

      1

      Reply
      Chat
    • SylviaIris13

      698d

      That's the stage I'm at right now nobody wants to diagnose but they are chasing their tails to treat it. I wish it was easier to do genetic testing :/

      0

      Reply
      • Memsalie

        698d

        @SylviaIris13 ugh me too šŸ’– good luck to you and your quest for diagnosis

        1

        Reply
    • Keikochan

      700d

      I'm in the same boat. Just did an echocardiogram and Holter to determine POTS for sure and I'll see a genetics Dr next month

      3

      Reply
    • MJ_PDX

      701d

      Geneticist is a great way to go but if you donā€™t have access to that, a PT, cardiologist, or PCP can help get the process started and perform some small tests.

      3

      Reply
    • MangoPeach

      701d

      Make an appointment with a geneticist

      2

      Reply

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
Ā© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion