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Memsalie

757d

I haven't been diagnosed yet, but two doctors have suspicions I have EDS and POTS. What do I do now?

Top reply
    • Memsalie

      754d

      @SylviaIris13 ugh me too 💖 good luck to you and your quest for diagnosis

    • SylviaIris13

      754d

      That's the stage I'm at right now nobody wants to diagnose but they are chasing their tails to treat it. I wish it was easier to do genetic testing :/

      • Memsalie

        754d

        @SylviaIris13 ugh me too 💖 good luck to you and your quest for diagnosis

    • Keikochan

      756d

      I'm in the same boat. Just did an echocardiogram and Holter to determine POTS for sure and I'll see a genetics Dr next month

    • MJ_PDX

      757d

      Geneticist is a great way to go but if you don’t have access to that, a PT, cardiologist, or PCP can help get the process started and perform some small tests.

    • MangoPeach

      757d

      Make an appointment with a geneticist

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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