Dealing with Mast Cell Flares: Seeking Advice

Okay this is a tough one. I hope someone could have some insight. I seem to be alone on this as far as I have come across unfortunately so idk where else to turn. My environmental allergies are really really bad. I was looking for it on the list of things but it's not an option. basically it's like seasonal allergies but for me it's all year round. It's not just all year around though. Ever since covid started, my allergies just multiplied. Has anyone experienced this? I can't come within 2 long city blocks of a park without almost immediate anaphylaxis. I swell up, I can't breathe through my nose or my mouth, I cough up a shit ton of never ending mucus, my eyes swell up, and I try to breathe and try to decongest but it's impossible and I will stay that way no matter how many allergy medications I take. Worst part is I feel like no one takes how bad it is for me seriously. I have tried them all. benadryl, Zyzol, Zertec, Claritin, I even have the Zertec wipes. It helps the tiniest bit but even when it all gets better, the same night of those outings, my body goes through it all over again as if it's happening again. my nose closes up, I gasp for air, I swell and sometimes I can't get anything out to help alleviate the sensation of dying by drowning. On top of the allergy medications I have also been put on antibiotics and steroids so often that my Avascular Necrosis advanced and my stomach has been almost completely destroyed. I saw an allergy specialist and insisted that they do a blood test to check for all of my allergies instead of scrape tests because they kept telling me that they are equipped for the situation but I know they are not. It is a tiny office and if an epi pen were enough for me it would have done the trick when I accidentally ate Ben & Jerry's Chunky Monkey, blissfully unaware that it had banana and walnuts. They finally agreed to it but then the blood test came back as me not having any allergies and I called BS but they insisted that the test was right and if I thought otherwise then I have to go get the scrape test done. This doctor is supposedly one of the best doctors in America and I have the misfortune of not having any other places for option. Idk why my area is lacking an allergy specialist, but we have like three new lipo clinics even though we are all lower to middle class. I digress, but it pisses me off. The doctor's office is on a block with a ridiculous amount of trees for an urban setting. Even if it were suburban it would be too much, and on top of that there are plants growing like wilderness all over the clinic. I do not want to go back, but my situation is escalating and she refuses to help me without a scrape test. Words cannot express how scared I am. It's 1:35am here right now and I am awake because I cannot breathe and always going through this is surreal. I feel like I am escaping death every night without going into a building surrounded by more than enough to kill me but I also feel like the way this is going, I may not wake up eventually and of all the health issues I have, it will be over bullshit like allergies. I know there are immune shots and I really want to get them, but if anyone has anything, ANYTHING to suggest, pleeeaaaase help! There is one other place I may be able to travel to. It's across the street from a park full of grass and trees but if anyone has any ideas or suggestions on how to go by getting immune shots without going to the clinic that prescribes it, I am desperate. It doesn't have to do with immune shots either. I have tried a humidifier and I have that machine that cleans out the nose. When my nose is too swollen, the saline water goes in but doesn't fully come out. It. Is. horrifying. I also do a lot of tea. I have done by best to educate myself on herbal remedies. My stomach hasn't been tolerating them lately though. Not that they do enough anyway. I eat chicken soup almost every day and it is a very very temporary help. Cannabis is not an option. I will projectile vomit. CBD makes my stomach feel like it's ripping apart. That's about the jest of common suggestions I think. I'm sorry I am a difficult case. Also apologies. I tried cleaning up my rant but when I am stressed, I can never quite type out of a cluster.

I have been experiencing hives all over my body, very itchy, painful, hot, I’ve been taking Benadryl and Pepcid regularly but it really doesn’t help at all. The only thing that helps is steroids. I’m seeing an allergist and she needs me off the steroids so she can do some tests and now I’m completely covered in hives and absolutely miserable. I’ve used calamine lotion, hydrocortisone, epsom salt baths, baking soda, apple cider vinegar, oatmeal, everything nothing helps. Does anyone have any ideas what I can do? I can’t sleep, I’m just miserable!

Struggling with Mast Cell Activation Syndrome