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473d

Having suffered for 25 years with a chronic illness that has completely turned my life upside down, you would think those who knew what a go getter I was and understand that I am really suffering. Do any of you have helpful ways to state the obvious to those who are blind to my basic needs being unmet?

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    • Footloose

      471d

      I've had chronic pain ever since I was 19. I had bad motorcycle accident I ended up breaking my tailbone and throughout the years it progressively got worse found out that I had degenerative nerve disease. Then recently I read that the osteoarthritis that I have actually eat away at your joints and I didn't know that and I've had also arthritis I believe I was 24 when I was diagnosed with it after I had my first two children. A lot of people ask me during this journey that I've been on how do I manage. The only answer that I can honestly give is one day at a time I keep pushing myself and pushing myself because I remember the words that my physical therapist told me he said you don't move you'll lose and I keep that in my mind even if I'm in the worst pain ever I just get up and I move regardless how much pain I'm in even if there is tears rolling down my face I have to move regardless

    • Footloose

      471d

      And I just turned 53 on the 12th I believe it's been 33 years

    • Footloose

      471d

      I've had chronic pain ever since I was 19. I had bad motorcycle accident I ended up breaking my tailbone and throughout the years it progressively got worse found out that I had degenerative nerve disease. Then recently I read that the osteoarthritis that I have actually eat away at your joints and I didn't know that and I've had also arthritis I believe I was 24 when I was diagnosed with it after I had my first two children. A lot of people ask me during this journey that I've been on how do I manage. The only answer that I can honestly give is one day at a time I keep pushing myself and pushing myself because I remember the words that my physical therapist told me he said you don't move you'll lose and I keep that in my mind even if I'm in the worst pain ever I just get up and I move regardless how much pain I'm in even if there is tears rolling down my face I have to move regardless

    • TabbysMom

      473d

      Ways to state the obvious? I am so sorry but I have no idea. I've been at this for 15 years, I've tried so many things! From pamphlets, books, taking them to doc appointments, to showing my hiny! Nothing ever helps. As everhopeful stated, if they don't have it, they don't get it. I've even been screamed at for using a handicap parking spot! Yes I have a handicap license plate. If it can't be seen, felt or touched "they" don't get it. May The Great Spirit bless you with people that care, that see & try to understand. May Spirit comfort you, ease your pain & wrap you in love.

    • everhopeful

      473d

      What I've found in my journey of being a chronically ill person is unless my friends or loved ones are chronically ill themselves they really don't get it. People aren't going to go back in time that far to remember who you were and I say that with all due respect and gentlenessšŸ’œ. Is there anyone in your life that is particularly non supportive of you that you can think about letting go? I had to stop being friends with someone who'd been in my life for 15 years but he was making things worse because he refused to see me as I am rather than who I was when he met me.

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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