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Auntie

815d

How do you deal with chronic and progressive conditions that make familiar, normal activities impossible to participate in? How do you deal with chronic, crippling pain and progressive loss of mobility?

Top reply
    • MystikMandy

      714d

      Ive got mobility devices and honestly have to just find new things and that's hard sometimes

    • MystikMandy

      714d

      Ive got mobility devices and honestly have to just find new things and that's hard sometimes

    • emel5070

      714d

      I'm bedridden until my 2nd surgery in a few weeks. I have my 14 year old daughter wash my hair and help keep up with the house cleaning. I'm currently on Prednisone and Gabapentin with Tylenol and Ibuprofen around the clock. I'm bawling my eyes out in pain. I can't even roll over in bed much. I have my daughter push me around the house in my office chair when I need something. I'm hoping this surgery will help me soon so I can walk again.

    • Eeyorespal

      814d

      Knightstar, what an excellent idea! I am currently using Meals on Wheels, I'm also applying for Medicaid.I may not qualify for everything, but I'm trying. The more you can do for yourself, including asking for help, the better off you are!! Wonderful idea!!!

    • Knightstarr

      814d

      I have been using resources from the aging and disability center. They hooked me up with a care coordinator and a home nurse. They are helping me find housing. They got me a shower chair and said that I can get braces and other medical stuff from them. They give me rides to appointments and stuff. Also they said that when I am having too hard of a time with the chores they will have someone come over and help with that too. It was very hard for me to ask for help but I am appreciating it a lot now that I have it.

    • Eeyorespal

      814d

      Auntie, I completely agree with Mariposita. Keep doing everything that you can. Some days are more difficult than other days. But the problem with just giving up is that you will loose abilities. And this would put you in an even worse place than where you are now. I am 70. I have lost a few abilities and they're extremely difficult to get back. I would also recommend that you see someone for your mental health. Depression will make it even more difficult to keep trying. I see a psychiatrist every month and I'm taking 2 antidepressants. I miss having my own car and the freedom that a car gives. I miss living on my own. But I live with my younger son and his family. I could go on, but the. "I miss" list could go on forever. I know it's extremely hard, but keep trying. I promise, that you'll be glad that you did. Remember to celebrate your victories, no matter how small!!!

    • GingerHair

      814d

      I’m in pain everyday. It’s gotten progressively worse over the years. My OA is in every joint so something, somewhere hurts all the time. There are so many things I cannot do anymore and it’s really frustrating. My abilities are very limited. No wonder I’m depressed.

    • Mariposita_Obsidiana

      814d

      Honestly? I do what I can. Some days it takes all of my strength and my willpower to do anything, much less work or have fun. Even on good days, I’m in pain, I just act like I’m okay because I know people get tired of hearing it.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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