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Kalena

773d

Having a really hard day, tired and in so much pain all over. Makes me quiet , mostly because when I do express myself I am met with, dismissive comments and basically ignoring me and my needs. Expecting me to perform as usual… how do I cope ?

Top reply
    • Raquel226

      760d

      I can relate with so much of what everyone is saying. It's so hard when people don't understand, try to understand, or dismiss how we feel. If you don't have someone local you can speak to, I've found this platform very helpful. There's nothing quite like talking to someone who knows exactly how you feel, you can feel seen sometimes for the first time. Please reach out if you need to talk, and don't make any sudden, rash decisions.

    • Raquel226

      760d

      I can relate with so much of what everyone is saying. It's so hard when people don't understand, try to understand, or dismiss how we feel. If you don't have someone local you can speak to, I've found this platform very helpful. There's nothing quite like talking to someone who knows exactly how you feel, you can feel seen sometimes for the first time. Please reach out if you need to talk, and don't make any sudden, rash decisions.

    • MystikMandy

      771d

      I've been fatigued for weeks it's awful I spend so much time alone scrolling and watching the same shows over and over I am so bored and I keep thinking I want to pick up a hobby but I just don't even have the energy. It's a major bummer.

      • Kalena

        761d

        @MystikMandy yes it is so isolating, I have a dog and that gets me out. He helped me through my darkest days

    • Invisible

      772d

      Thank you for making me realize why I have become so quiet. I used to be so outgoing and full of life. I have been shunned and hushed.

      • Kalena

        771d

        @Invisible absolutely

    • Invisible

      772d

      😥❤️ I feel the same and it is a lonely place to be. I am sorry. Just know you aren't alone.

    • Psycho24

      773d

      I'm sorry to hear that, that is really frustrating. Maybe you can try writing or typing your feelings out (if you feel well enough to do so) that way you can get the feelings out without having people make it worse. Or maybe finding specific people to express this to that are understanding. I hope you are able to find a way to cope!

      • Angel1

        773d

        @Psycho24 I am in the same situation! I can’t talk about my problems to either my husband or my 2 sons! It sucks ! Im definitely alone dealing with my health problems! They just expect me to be the way I use to be before I got sick😢 Its very lonely😭💔

        • Psycho24

          767d

          @Angel1 and @Kalena I'm sorry you are both dealing with this. When they are dismissive of the pain and struggles maybe you could try using something called "I feel" statements. You just say "I feel (insert emotion) when/because (insert event)." Example: "I feel hurt when I talk about my pain and it is dismissed". This typically comes across as less accusatory and people are usually less defensive in their response. You could also try asking why they are dismissive or say your not in pain. Providing them with data and information may help them realize its not fictitious. I hope some of this is helpful!

        • Kalena

          771d

          @Angel1 😥 I understand

    • nk31784

      773d

      I understand this my mom has Sjorgens lupus and i have SLE everyone says well your mom doesn't complain.

      • MystikMandy

        771d

        @nk31784 I have a sister with some of the same diagnosis as me that says "oh Amanda stop complaining you're not even in as much pain as I am and I make it" it sucks

    • Yiayia

      773d

      😥❤️

    • Gingersnap40

      773d

      😥

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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