Feeling Helpless in the Battle of Figuring Out What's Wrong

yeah.... doing too much makes me worse alone. It's a stupid difficulty balancing act!

geez that is super scary. I guess kind of a good thing is that my Rhemotologistade me go to literally every specialist over years and then almost every test imaginable done. It's hard to know what is what though .. I have several other health issues.

I'm recently diagnosed and was not told about pain management... I guess I should be asking for a referral. I take Cymbalta, Gabapentin and just stayed a very low dose of muscle relaxer at night to help me sleep.

thank you. I had been waiting 3 years for them to say I have it. FINALLY on meds... having a but of relief but I'm miserable.

I think we all get feelings like this with fibro, we just gotta give ourselves a break, take a rest, and the keep going when we can. Everyone finds relief in different ways, but it's definitely important to remember all of our symptoms will vary a bit and so will what helps us. Just keep moving and don't get discouraged if something doesn't work for you. I think the only universal things that helps everyone with fibro are limiting stress and getting good rest. For me personally every diet caused more stress and never relieved any symptoms. I also had to learn to NOT keep busy or push myself too hard physically. It made me prioritize my time for people and things I actually wanted to enjoy so in that way it has been a positive thing in my life. 🖤

I was diagnosed with fibro about a year ago but I just really felt like it was something more. Even tho it was exhausting I went to many many doctors begging for more tests and answers and recently I was diagnosed with POTS as well. So if you feel like it’s more I think you should continue to fight for help and hopefully get what you need!

Honestly I relate. It feels like for everything I figure out two more unknowns crop up.

It took me years. I only more recently found many of the conditions causing my pain. I went from having a few mental health conditions to over 20 diagnoses in about a year.

I feel the same way you do. I’ve been feeling like there’s something else outside of fibromyalgia. Like yea I have fibromyalgia but something else is going on too.. but since all test are negative I’m assuming everything is fibromyalgia… last night I read an article about a lady who died because her test were negative but ended up being really sick.. doctors kept saying fibromyalgia when she has other complications going on. 😩 I got scared and couldn’t finish reading it.. this is one of my biggest fears

Fibromyalgia is a chronic pain, inflammation debilitating disease. Have you tried a gluten-free diet. It does help. Also, I would ask your pain management doctor for a prescription for aquatic/pool therapy where the water is 95°. It really does loosen up your muscles and tightens up your core. I go twice a week. It is amazing what I can do in the water as opposed to regular physical therapy. Good luck 🍀 ♥️💛🥰 Never give up the fight. We are strong Fibro warriors. Remember, you are not alone!

For what it's worth, if you know it's fibro, you know it's not delusions and you know it's not you being lazy. It is a genuine, recognizable disease. It is a tough diagnosis, one that affects your life, but you are not to blame for the effects. The disease is. You are fighting a somewhat rare fight my dear, and that's commendable. Learn HOW to fight it. Yes, your life is different than others, but they aren't fighting the same beast you are. Keep it up. You are a warrior, and are a proud fighter!