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BeeMarrie

491d

I'm really really struggling atm I feel like the doctors won't listen and just are trying to fob me off my fibro is getting a lot worse and its scaring me its just getting to much 😭 if anyones up for a chat that can relate I would appreciate it x

Top reply
    • DogWhisperer

      472d

      God I thought I was alone in the pain 😭 I didn't think anyone understood what I was going thru. My parents think they know but they don't. I suffer from fibromyalgia as well as severe lower back pain. But the drs don't know why. I can't be on pain killers because I have an addictive personality. So I'm always crying or something. Trying to hide the pain from my kids because they get sad when they see me hurting like this. Sometimes it comes on suddenly, anywhere, and it jerks me forward. Like I'm being hit by a truck from behind. Taking my breath away. I'm on 3 morning pills and 7 night pills for severe anxiety, depression and other mood disorders because it's literally killing me inside. I don't want to live with this pain.

    • DogWhisperer

      472d

      God I thought I was alone in the pain 😭 I didn't think anyone understood what I was going thru. My parents think they know but they don't. I suffer from fibromyalgia as well as severe lower back pain. But the drs don't know why. I can't be on pain killers because I have an addictive personality. So I'm always crying or something. Trying to hide the pain from my kids because they get sad when they see me hurting like this. Sometimes it comes on suddenly, anywhere, and it jerks me forward. Like I'm being hit by a truck from behind. Taking my breath away. I'm on 3 morning pills and 7 night pills for severe anxiety, depression and other mood disorders because it's literally killing me inside. I don't want to live with this pain.

    • Amelia_Shepherd

      472d

      I am happy to chat xx

    • Chesbro99

      472d

      Here to chat

    • melodyGrace

      487d

      I am happy to talk to you too. The doctors honestly don't believe in fibromyalgia but us that have it know its definitely real. The pain, the brain fog, the ibs, the tiredness etc.

      • BeeMarrie

        484d

        @melodyGrace I will message now thank you, I hope your okay , thank you for the support appreciate it , I'm sorry your going through this , I like this app because it makes me feel like I'm not imagining things and its not just me x

    • Lunako

      487d

      Hi there. I am also struggling bad with fibromyalgia. I’m very sad and depressed. It’s hard to not think about how good I used to actually feel and move around to this…. Pain everywhere, feel stiff, bad chest pain, pain around my armpits, just recovering from a cold is extra! Everyday I just wanna go back to how it was. It’s very accepting this new normal. I’m on meds but they do absolutely nothing as my body is just immune. I cry most days alone. No one will ever understand this pain unless they’re in your shoes. Otherwise you seem like a complainer or a hypochondriac or someone who just don’t know how to take care of themselves. Fibromyalgia needs to be taken more seriously. It’s painful as fuck!!! And it’s for real! But sorry to rant and I’m sorry you too have to deal with this. Can’t say it gets better cause it hasn’t for me it feels worse. So I hope you can find a way to manage your pain and sadness. Best of luck to you! And we are all here in this together! ✝️☮️

      • BeeMarrie

        484d

        @Lunako thank you for the support and I'm sorry your struggling aswell xb

    • Pinkdreamer

      491d

      *he retired

      • Pain_Warrior89

        491d

        @Pinkdreamer Is cannabis legal there?

        • Pinkdreamer

          491d

          @Pain_Warrior89 Yes. I'm sorry, I forget that it's not legal everywhere.

    • Pinkdreamer

      491d

      This is super common with fibromyalgia. When I was first diagnosed about 18 years ago, I had an excellent doctor that treated me with painkillers and anxiety meds that absolutely saved my life. Then he tried and I had another doctor who did the same. Then he tried, too. Then the "opioid crisis" hit, and suddenly no doctor will prescribe anything but exercise and aromatherapy. Screw that! I almost died from this fibromyalgia. I nearly killed myself because the months of constant excruciating pain was absolutely too much. I finally decided to break down and try alternative drugs because I had no other option. Cannabis and kratom have saved my life.

      • BeeMarrie

        490d

        @Pinkdreamer I'm so sorry to hear that you have been through all that I have messaged you hope thats okay?

    • Doglover25006

      491d

      I am happy to talk. I understand this fear and frustration. It took me years to find doctors who take me seriously and want to help me. Trust your instincts. The doctors are not living in your body feeling what you feel. Their job is not just to treat your symptoms it is also to ensure you are comfortable with and understand the care you are receiving. And you have the right to change doctors at any time for any reason.

      • BeeMarrie

        491d

        @Doglover25006 I've just messaged you thank you! & yeah I agree with you but this point I'm literally on not a lot of pain relief and they just push it off like it doesn't matter , like I feel like I'm loosing who I am ! And its worse that I'm not being listened to

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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