See Alike in...

Alike App

Browser

My Medical Journey: Battling GERD, IBS, and T1D

teiovex

736d

I just wanted to share what I’ve gone through the past few weeks — I made a previous post that I deleted (because I am now making this one.) my medical history is extensive. this post is specifically about GERD, IBS, ETC — and even T1D. two weeks ago on sunday, after not eating for four days, the nausea hit me like a freight train. I was vomiting up bile and acid and my stomach was having spasms. I can’t even describe to you how painful and uncomfortable this is — anyways, three ER visits later, I was admitted to the hospital, where they did x rays, a cleanse through an NG tube (I couldn’t/can’t keep anything down, even water) which was ten hours of vomiting and crying. traumatic event. they then sent me home. I went on vacation to maine afterwards, I seemed okay. I did the regimen that the hospital suggested and I thought that since I could eat, I was okay. boy, was I wrong. about a day after we got home, I woke up to the same problem. it was immediate and I was becoming depressed, I’m still fighting that now as I heal. more ER visits, I got admitted again. they found good IV medications for me and I was able to keep some pasta down today. the teams and all the doctors here are going to figure out what’s causing this — my chronic constipation, is it gastroparesis? and ETC. so, I wait. thank you all for reading. this battle has been hard but I’m trying my best. I hope my stories can help people see they aren’t alone in situations like this, where it takes so much effort to be seen, and heard. you’ll be okay, we both will ❤️

16

41

41

Abdominal Distention

Chronic Constipation

Chronic Nausea and Vomiting

Nausea and Vomiting

Chronic Abdominal Distention

Gastric & Duodenal Ulcer-Peptic Ulcer

Nortriptyline

Chronic Diarrhea

Low Mood

View all
Top reply
    • Beckibb

      405d

      Ptl

      0

      Reply
      Chat
    • Beckibb

      405d

      Ptl

      0

      Reply
    • teiovex

      617d

      update: it was gastroparesis, possibly from my EDS or diabetes! I am finally being treated.

      1

      Reply
    • brk32blondie

      682d

      Thanjs

      0

      Reply
    • Mac2

      683d

      I’ve been battling what seems to be a similar fight as you I just recently found out my gallbladder is at a low percentage and isn’t functioning properly, I’m here if you want to chat some more!

      1

      Reply
    • Beckibb

      683d

      🙏🙏🙏🙏 for you. My son has CVS which is chronic vomiting syndrome. He’s on nortriptyline now which has helped immensely. Praying for you.

      1

      Reply
      • teiovex

        617d

        @Beckibb wishing the best for you as well ❤️

        0

        Reply
    • brk32blondie

      683d

      🙌🙏👍❤️💕🤗

      1

      Reply
    • brk32blondie

      683d

      I can go 3-4 days without a bowel movement been dealing with this since 88 89 doctors can't figure out why

      1

      Reply
    • elo2002

      732d

      They do have GI motility doctors have you looked into seeing one of those

      3

      Reply
      • teiovex

        617d

        @elo2002 I’m finally being referred to one yes!

        0

        Reply
    • teiovex

      734d

      UPDATE; they did an endocolonoscopy and found nothing. they say it’s my IBS but I feel like there’s something more. we’ll be going to a specialist soon for it. hopefully something, ANYTHING, can stop this. I know everything and everybody here will be okay ❤️

      2

      Reply
    • MooieModer

      735d

      When any of us advocates for ourselves it is cause to 🎉 celebrate because often there is no one to advocate for us.

      2

      Reply
    • elo2002

      735d

      First of all don’t let anyone tell you it’s anxiety, because it’s not. Also don’t be afraid of getting a second opinion

      2

      Reply
    • Campbellmay98

      735d

      🙌

      2

      Reply
    • rewind

      735d

      I am so tired of being depressed.. I have to plan my days around my IBS. Sometimes diarrhea sometimes constipation. actually sometimes I think the constipation is better until the pain comes

      2

      Reply
    • Bijoux_bean22

      736d

      I am in a similar boat. I think I have gastroparesis, my mom thinks it’s my mast cell stuff and the GI who gaslit me and doesn’t believe that I have EDS ect. thinks it’s just another ulcer. He wanted me to take more pepcid than I was. I did it for two days and felt so awful I haven’t taken any since. I wish you the best. Feel free to dm if you want to commiserate.

      2

      Reply
    • KierstenH

      736d

      ❤️

      1

      Reply
    • jellyforspongebob

      736d

      ❤️❤️i have had similar situations and lots of er visits too! youre not alone. i finally have a gi specialist and im now only throwing up once a week. i was doing it every night and diarrea as well. im here if you need to chat

      2

      Reply
      • teiovex

        736d

        @jellyforspongebob proud of you! keep up with that progress my friend 😌

        1

        Reply
    • Bartender

      736d

      Do you have POTS or MCAS

      1

      Reply
      • teiovex

        617d

        @Bartender might* and they were right, it was gastroparesis

        0

        Reply
      • teiovex

        736d

        @Bartender I do have POTS, they believe it mighy be gastroparesis from T1D or EDS right now. my IST (under the POTS umbrella) is doing well right now. we will see

        0

        Reply
    • CarolJo

      736d

      🙏

      1

      Reply
    • CarolJo

      736d

      I'm going through this as well. I just had a stomach scope and they could not do the colonoscopy I wasn't cleaned out. They did a biopsy on inflammation waiting for the results. I called and told her the pain in upper right abdomen is getting worse along with nausea and all other symptoms she gave me pepcid to take 2 times a day. I have Already been prescribed and taking this med for almost a year now to cont. To take Zofran it almost feels like a constant Charlie horse under my rib. Do you or anyone else have pain there.

      3

      Reply
      • Mixtape

        735d

        @CarolJo Zofran causes constipation, i was prescribed it for nausea, it didn’t work for the nausea and it made me constipated for a week :(

        1

        Reply
      • Nerdzilla

        735d

        @CarolJo actually yeah, I do have chronic under the rib pain. That's where liver and gallbladder is. Apparently my gallbladder is my internal hackey sack. Omg it can hurt same days.

        1

        Reply
        • CarolJo

          735d

          @Nerdzilla 🙏 that sounds miserable

          1

          Reply
      • Anxiousbutterfly27

        736d

        @CarolJo how long has it been happening your pain region sounds similar to chronic gastritis pain

        1

        Reply
        • CarolJo

          735d

          @Anxiousbutterfly27 off n on year consists months

          1

          Reply
      • teiovex

        736d

        @CarolJo I hate that. I hope somebody else does better to help you or that you get your results back soon and know what’s wrong ❤️

        0

        Reply
    • crimsonwolf

      736d

      keep ur head up and strong! i will pray to the lord to watch over u!

      2

      Reply
      • teiovex

        736d

        @crimsonwolf thank you!

        0

        Reply
    • Elise_Laura

      736d

      So sorry you’re going through this! It’s hard when you get discharged and you’re left to fend for yourself!!

      3

      Reply
    • inflamedfuturern

      736d

      I've had mysterious GI symptoms and my own hospital trips over the last year and no answers yet. I hope you're able to get some answers

      3

      Reply
      • teiovex

        736d

        @inflamedfuturern you too ❤️

        0

        Reply
    • JennyPenny

      736d

      I gone thru this. Wanted to die.

      2

      Reply
      • teiovex

        736d

        @JennyPenny I definitely feel it. so happed there’s an “-ed” at the end though ❤️

        0

        Reply
        • JennyPenny

          736d

          @teiovex I still want to die :x But less immediately

          0

          Reply
    • MooieModer

      736d

      🎉 your selfadvocacy.

      2

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences

Write your question here...

Get answer
Thank you! Your submission has been received!

Related Questions

Find people who are
experiencing a similar
medical reality

join the community
100% Free
100%
Free
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2023 Alike, Inc
About AlikeWisdomFAQEditorial TeamAll ConditionsAll PostsAll Communities
Your PrivacyStoriesCommunity GuidelinesTerms of UsePrivacy PolicyBlogContact Us

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion