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Rachi

725d

I agree with you 100% I say I am not up to doing something tonight and the response I get is suck it up we haven’t seen you all week. Or don’t worry we will pick you up (I have trouble driving lately) but they don’t get it fully! My mom has experienced unfortunately chronic pain and gets it to a point but I feel like the rest of my family and my husbands don’t get it all! I am supposed to leave Friday to head to drive to my in-laws (18 hour drive) and I was planning on flying back 3 days later to be at my doctors appointments and I truthfully don’t think mentally or physically I can do it! My spouse agrees but then blames it on my health to his mom who I don’t think gets it! She keeps trying to get me to go to get chiropractor and get on supplements which I have tried in the past! I am right now flaring so Bad I don’t think any of that would work! How would you handle family pressure to just suck it up when your legs and ankles are swollen to 3X normal size and almost everyone of your fingers has psoriatic arthritis and they burn and bleed! And then on top of that your stomach is completely messed up and in pain!! I need someone who gets it!

Top reply
    • Itsjustfi

      724d

      Been there done that…… you do have to learn to just do what’s best for your body and not let the stress get to you bc I will only make it worse. When I have to be firm with people about my current pain levels I am bc that it what is most important.

    • KitKat1450

      724d

      I get it. So sorry you’re going thru this. I go back and forth on suck it up to avoid conflict so I don’t get push back and no I really cannot because I won’t be able to function after if I do. It’s landed me in some really dark places trying to suck it up and deal with the consequences myself. I try to talk to myself and weigh the pros and cons and ask myself am I going to be resentful when I’m alone and hurting or will I be glad I got out. Also prioritizing helps- if I go meet this friend or even if they come over will I have the energy left to cook dinner and shower after or get work done? If not, I cancel or reschedule now instead of pushing thru and paying for it. That helps me figure out what I’m really needing. And it’s frustrating when people don’t understand that literally everything has a consequence. I hear you and I’m sorry you’re going thru it. I wish I could tell you I figured out a way to be at peace with expressing your boundaries but it sucks especially with the people that are close. I’ve realized most of the time I do social things now it’s out of obligation and not because I really want to. I want to want to and enjoy it but I’m in a flare and I don’t want to be around ppl and constantly getting push back on my boundaries and they want to fix me and help. But it usually makes it worse for me and harder to control myself from a deficit all so they feel better or like they’re helping. That’s something I’m working on accepting and calling people out on because Im not and cannot continue to be responsible for their feelings. I think it’s just hard for people to comprehend that being around them does not make the pain less and is not actually going to make me feel better past a certain point. Right now it makes it worse, and I’m not up for that right now and all my energy needs to go into being ok and somewhat functional until I’m ok and then things get easier again and I can be there for people like I want to. It’s hard to say the least. I’m so sorry you’re struggling and hope that others can lead with compassion and that your boundaries are honored. It sounds like you’re doing the hard work of trying to stay engaged but also be ok. I hope it gets less taxing for you and you get some relief.

      • Rachi

        724d

        @KitKat1450 thank you so much! At least I know I am not alone! I am also flaring right now and unfortunately it is the worst it has ever been! I love seeing my niece and nephews but I also don’t want them to see me like this! They have there other grandma (my sisters husbands mom) living with them now while she is going through chemo and radiation treatments and I don’t want them to come to have fun with their aunt Ray and see me hurting so I do everything I can to hide it from them! And then I pay for it for the next couple days! I saw them for 2 hours Sunday and I am still paying for it today and it’s Tuesday! I barely drive anymore at all because it is just too painful I can’t even take my dogs down to go potty! It really sucks and I feel so alone because I feel like no one else understands! I know this is messing with my mental health but I really take enough medications now that I don’t want to go to psych doctor and get more! I can’t sleep I am up all night in pain! I go out to my chair and ice because I don’t want to wake my husband tossing and turning in bed! I’m just really grateful to know I am not alone and that there are people out there who understand!

        • KitKat1450

          724d

          @Rachi you aren’t alone even tho it feels the opposite. I’m so glad you do have some joy seeing them but also can be heartbreaking trying to hide the pain and feeling like no one really sees how hard it is. I hope people can see you and let their love heal the emotional pain, it’s hard enough just dealing with chronic pain especially in a flare.

    • Itsjustfi

      724d

      Been there done that…… you do have to learn to just do what’s best for your body and not let the stress get to you bc I will only make it worse. When I have to be firm with people about my current pain levels I am bc that it what is most important.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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