starlightnovas

13d

does anyone else really struggle with friends/family not believing them/thinking you're just being dramatic etc? I've had this forever and nothing will make them realise I'm barely a functional human anymore πŸ˜…

Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)

Joint pain

Malaise & Fatigue

Headache

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  • avian

    13d

    yess it's a nightmare. the weird thing in my case is that my mom is severely chronically ill and always has been. but for some reason she refused to believe that i might be ill too?? even though a lot of her conditions are hereditary? it's so weird. people just won't believe what they don't wanna believe i guess, so frustrating 😞

    • starlightnovas

      13d

      I'm so sorry you've had to deal with this stuff too :( my mother is the same I'm regards to one thing, I guess it's just denial that your kid could be sick? I'm not sure 😞

      • avian

        13d

        yeah πŸ˜” it's probably part denial and another part guilt. i guess they think it's their fault that you're sick so they just decide not to believe it? but that's not helping anybody lol. they need to fix their way of thinking

  • MerryHell93

    13d

    Not so much not believing but not understanding how bad it is, or they forget I'm ill because I pretend I'm fine (I'm working on not doing that but it's a process) and I think a lot of people just don't understand how a person can be permanently in pain and exhausted but still functioning because they gave no choice

    • starlightnovas

      13d

      yea I understand that! I understand it's definitely hard for others to realise how bad it is for us, I realise I'm being dramatic πŸ˜…

  • KhronicKoder

    13d

    My dad believes I'll get better once the summer comes and I get more sun πŸ™ƒ

    • starlightnovas

      13d

      I understand that, I get told I will be perfectly fine with more vitamin D (even tho my levels are fine 😭) it's so frustrating, I'm sorry πŸ’—

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