Since these conditions are invisible and restrict certain foods enjoyed by the majority, how do you handle criticism? I can’t stand confrontation and can’t believe some people would doubt someone’s illness. How do you handle this?
Chronic Generalized pain
Bring my own food many places and try to make jokes at my own expense ahead if difficult convos. “When I eat soy I become a hot air balloon of farts :-) :-) :-)”
that is brilliant! I did that this weekend and brought along some egg life chips and my own tortillas. It was a Mexican spot. It drew attention so I said “hey i come prepared!” And left it at that. I can’t stand food pushers that don’t understand that it’s not that you don’t like it or find it appealing. It’s the consequence of consuming it that well outweighs its momentary flavor.
I have to try egg life - had not heard of it! It makes me mad, too, so I mostly try to ignore/ avoid it. I have had years of practice with this. Lmk if you want any more hot takes/ tricks.
Not that we should have to do that… but it can be helpful
You don’t have to be confrontational but you should ALWAYS advocate for yourself. I limit what I share & I was very open before. Watch who you share with. There are other things then your illnesses. If someone acts ugly about it back off, life is hard enough w chronic illness. Set up healthy boundaries even w close family members. I am picky now (much older) about who I let in my circle. I am a good friend & person so I expect to be treated as I treat others. I have a support group that does understand & I use it & therapy. Good Luck! - I actually love confrontation so I have had to learn to look at my motives. ❤️
Couldn't have said it better!
Hi 👋🏼 totally relate to making jokes at my own expense! But the people in my life seem to be understanding enough for the most part (and consequently make me choose the restaurant we go to 😂 ) but I try not to be picky and if I have to eat a salad and french fries because thats all I can eat well then I just tell people I love potatoes and Im happy and we move on. However! My mother thinks all my problems are psychological (they’re not) and obviously I can’t kick her out of my life, let alone my social eating life lol, but thankfully she also has a gluten and dairy intolerance so we can happily eat together mostly. I just deflect the comments that I don’t wish to harp on and change the subject.
It is wildly frustrating when people do not understand or even TRY to understand what it’s like to eat something and feel so awful afterwards! Sometimes I do just get honest with people and say that I will be immobilized and in pain if I eat this bread, or whatever it is! And no one wants that for me so they get it and it usually does the trick. Honesty helps and also laughing at the honest truth (and our gassy selves!! Lol)
I let people know in advance if I need to (like cookouts) and try to not take the people who treat me like a big inconvenience too personally. My family has learned to ask but only after years of me insisting that I'm not showing up to family gatherings just to end up in pain. Thankfully (?) most of my family has similar problems by now so I get less doubt and critique.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
Scan code or click below download the app