mysterious320

5d

I think I'm autistic my mum got diagnosed in 2019 and trying to help her come to terms with it has made me question if I am but I've seem the barriers that it's put up for her, I don't know if i should go for the test or not.... I don't want to be labeled for the sake of it I have enough labels as it is.... what would people say are the benefits and or the negatives of getting diagnosed with ASD

Autism Spectrum Disorder (ASD)

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  • tjazz

    5d

    What are your concerns about an official diagnosis

    • mysterious320

      5d

      I've seen the struggles my mum has gone through with her diagnosis and trying to get support and it worries me because I have other mental health issues that it's going to make things harder for me..... I worry that I'm just gas lighting myself I am good at making irrational points sound rational, so now I'm worrying that this is me just being irrational about my other mental health issues and trying to find a rational reason for it. I'm worried that it will make people treat me different, but my hope is that if I'm right that it will explain the reason I am the way I am in terms of I feel I also have PDA ( Hope that makes sense)

  • SmallCreature

    5d

    I found that getting a diagnosis helped me a lot, with feeling more confident with what I need help with and what I don't. I used to second guess myself ("am I just acting this way for attention" sort of thing). It made me understand that I'm not crazy, just wired different

    • mysterious320

      4d

      that's what I'm hoping but it's also making me worry it will make people treat me differently, even family members, seeing how they have responded to my mum scares me but I feel like it explains a lot especially if I have adhd with it too....

  • AnimalBoy

    5d

    From what I can tell the benefits are mostly qualifying for specialized treatments and the peace of mind that you're actually diagnosed. I just kind of worked towards the peace of mind without it, I know I am actually autistic and I honestly feel it should have been more obvious to more people in my life, I've done more research over the past couple of year than most of the medical professionals I've asked about the diagnosis have, because it was so hard to find someone who could even refer me to someone else for adult testing. They don't really do it in my state. With all that research I learned about a lot of the difficulties people run into during and after getting the diagnosis and support including a number of custody issues as well as learning that I can access most of the therapies and treatments i was interested in with my ADHD diagnosis. I have other mental and physical health issues but I still want kids so I'd rather lessen the chances that I can't and I decided against pursuing an autism diagnosis at all.

    • mysterious320

      4d

      I'm a type 1 diabetic and for whatever reason (leading towards the PDA thing) I can't manage it, I struggle doing daily injections and testing and I've had some doctors that as just take it one step at a time but my brain is an all or nothing, if it's not right/perfect then I've failed but it's a demand that I have to do those things or I die to put it bluntly and I feel that if I went down the route of getting diagnosed would help my diabetic team understand more and maybe open up the door for a pump because I struggle doing injections whereas I'm currently getting blocked...but seeing the struggles my mum has had with a late diagnosis has put panic in me and made me question am I gaslighting myself etc..... it's getting me anxious both sides of the argument because I can argue for and against it I just don't know what's right....

      • AnimalBoy

        3d

        it sounds like it might be actually helpful for you to have the diagnosis but it would be beneficial to find a medical professional who is more helpful than whoever your mom saw. Did she see a specialist? If so is there a different specialist nearby that you might have an easier time with? I would definitely look around for other options if you can

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