stormithegay

377d

hello! I am currrently struggling with a ton of random symptoms. I have no idea what it could be and I've seen two doctor and all they did was blood tests. I get really bad limb weakness, dizziness, constant headaches and I'm always tired no matter how well I sleep. the dizziness is worse when I stand and makes it hard to shower or do much of anything. I've tried vitamin c, iron, multisupliments and vitamin d and nothing seems to be Helping. at first the vitamin c was helping tons but it's starting to come back. I'm currently still taking vitamin c, iron and vitamin d but still nothing. any advice? wheelchairs have been a thought but I can't get one because my parents.

Dizziness

Anemia

Edema & Anasarca

View all
  • lizziemay

    377d

    POTS? ask about dysautonomias

  • stormithegay

    377d

    I was thinking pots but I feel like I need to do more research first. But I will probably bring it up at my next appt

  • abbz

    377d

    i agree with lizziemay, at the very least it could possibly help point you in the right direction! also, mayo clinic has the best pamphlet for pots!!

  • Clarianne

    377d

    Hi! I’m so sorry you’re going through this. I agree with others saying it may be beneficial to explore whether it’s stemming from dysautonomia. It could be helpful to see a cardiologist for the dizziness when you stand. Also making sure you’re nourished & eating 3 meals & 3 snacks per day. I know that can be hard if you have a history of an ED, but working with a dietitian or a trusted loved one to make sure you’re getting enough nutrients could be helpful. I’m not familiar with limb weakness as that is not something I personally experience, but I hope you find some answers & are able to care for yourself in the process.

  • Rasin

    376d

    it could be vertigo. and the next time you go to the doctor ask for a differential diagnosis that basically means they tell you all the things it could be and then you can ask questions from there

  • stormithegay

    376d

    The dizziness and limb weakness is the worst so far. The dizziness is kinda constant in the fact that it's there when I stand and when I sit it can turn into blurry vision. but it's fine when I lay down and some days it's barely there. The limb weakness is both arms and legs and the arm weakness can get very very bad if I try to focus on tiny details (trying to get thread through a needle, etc). I did notice I get ear popping so idk I guess it couldn't hurt to bring up again.

  • Bijoux_bean22

    375d

    Yeah look into both dysautonomia and neurological stuff. Also lyme, def ask about lyme. In the meantime, try a little more hydration throughout the day. It might help

  • stormithegay

    375d

    Thank y'all once again. I do stay pretty hydrated but a little more water can't hurt lol

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