I have been NED for 4 yrs . For those who are NED do you feel like it will always return ?
Neuroendocrine (Carcinoid) Tumors
4 years NED nice
where was yours and what was your stage/type ?
Atypical in lung . I had a upper lobe removed and 2 wedge resections . It was like um maybe moderatly defined. I was dx in 2016 and last surgery was 2018 . That are watching some nodules in my lower left lobe but after 4 yrs not much size increase.
that’s good news ! Well the watching part !
how do you handle the scans? I’m very claustrophobic !!!
Also how do the doc or maybe it’s the pathologist know that it’s the primary they took out ?
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