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Dealing with Chronic Migraines and Vertigo with EDS

Kae92

701d

Do you have severe chronic migraines and vertigo with your EDS? Does anything help them?

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10

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Migraine

Ehlers-Danlos Syndrome (EDS)

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Top reply
    • Kae92

      699d

      @MJ_PDX I just started botox. Hopefully it helps

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    • MJ_PDX

      699d

      Yes, I am in the same boat. I see a PT frequently, acupuncturist weekly, I am considering Botox, and starting saline iv to help with blood flow. Nothing seems to make it worse or dramatically better yet 😥 💕

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      • Kae92

        699d

        @MJ_PDX I just started botox. Hopefully it helps

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        Reply
    • Gingerbunny26

      701d

      I actually went to PT for my migraines. They poked prodded and pinched a bunch of muscles in and around my neck. I didn't have a true migraine again for close to 10 years. 🤷🏻‍♀️ maybe if you find the right PT who can actually do it right (which is really the hard part) they might help? Good luck hon, I know it's absolutely miserable

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    • Hanner98

      701d

      Yes I get chronic migraines. I went through every medication, shots, etc and nothing worked until I started getting Botox. I still get them but not nearly as bad as before!

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    • Vivi207

      701d

      The migraines have decreased since I’ve eliminated gluten (I know that sounds so cliche). I went from 5/6 a week to 5 total since 2018. Vertigo comes and goes and I just try to be as still as I can to mitigate the spinning of the room

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      • Heaven197987

        701d

        @Vivi207 same but I would also add having vitamin b12 checked and other vitamin levels

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        • Heaven197987

          701d

          @Heaven197987 I also recommend having a full thyriod panel done

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        • Vivi207

          701d

          @Heaven197987 I see my DO monthly and she’s all about lab work, so I get stabbed often and levels monitored

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      • Kae92

        701d

        @Vivi207 I have a gluten intolerance so that's already eliminated. My doctors have all hit walls and now we're trying magnesium infusions, but they don't seem to be helping much. Thanks though :)

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        • Vivi207

          701d

          @Kae92 sigh. I’m so sorry. Mine seem to be more MCAS related it seems

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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