Hi Raylene. I also have stage IV and often feel the same. I have a parent on dialysis who is sicker than me, so everyone thinks I am perfectly fine in comparison. It is lonely sometimes, but I notice that when I write down how I feel about it, then I can “get it out” for the day and don’t feel the need to talk about it as much. It is not the same as having a caring person to talk to about it, but it helps me get by. Maybe it will help you too. :)
I got stage 3 post Covid and a ton of other chronic conditions. It sucks and it’s bad !! I don’t want it to advance. I’m an ER RN and see the ugly side. The side we all don’t want. I see your likely born in 68 .. I was born in 69 we are to young for this.
Do you guys get back pain ? I also have renal artery stenosis and a neurogenic bowel and bladder - I straight cath .. all post Covid — longer list — but I just wanted you to know it’s major to me and find it odd that doctors just gloss over it ?? I have done reading about avoiding high phosphate food and gave up a real love of mine - Diet Coke … yah there’s that
I just found out that I am stage IV and just figuring out what foods to avoid and all my pain and this ckd and other problems are caused by an autoimmune disease
🙌 🙌 Hi everyone I have a stage four but I feel perfect my ankle sometime is it swelling but I don’t feel anything but my doctor look like he’s already pushing me to get diálisis
I'm on dialysis. Been on going for over 20 years with no success of a kidney transplant because of high antibodies. The transplant team says don't give up hope but I don't see how when these antibodies prevent me from getting a transplant. So stressed and giving up hope.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
Raylene
301d
I’m stage four cKD. I just would like to be able to talk about it without people telling it’s not that bad.
0
12
Share
Diffuse connective tissue disease
Chronic Backache
Chronic Kidney Disease (CKD)
Abdominal Distention
Sweetie1968
301d
0
JoyNoel
301d
0
JM17
300d
1
HopeWarrior
297d
0
Seahorse
297d
1
Coletteeee
295d
1
Easterbunny
295d
0
Easterbunny
295d
0
Jaysilva
294d
0
Jaysilva
294d
0
Jaimie
292d
0
Laurlie
280d
0
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision