hey I'm new to the group but I've had to live with the spray my whole life
Anyone with Diabetes Insipidus (DI) or anyone out there that has Complex Central DI? I am wondering what meds you take, What your struggles are? My struggle is with me forcing to drink a lot of water to make sure my sodium isn’t too high. (160’s been the highest for me) I also cannot lower sodium too fast bc once in the hospital, the nurses did with IV, and i was an 8 year old hallucinating, very scary. Average sodium is 155ish for a “normal” level. Major med i take is Desmopressin. Used to take nose spray but endocrinologist changed it to tablet to be more effective. I am on a bunch of other meds as well, but Desmo is one i NEED.
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)