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Sugars

2y ago

Do you have Diabetes insipidus? Let's talk!

Wow! I wondered if there really were other people with Diabetes insipidus. How were you diagnosed? Did you have MRI of your head too?!

Your answer

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Peanut1T

1y ago

I had a CAT scan when I was 7 years old and they found the craniopharyngioma on my pituitary gland. They removed 1/2 of the benign tumor, because removing the whole tumor, would've caused me to be blind in my right eye. I had no appetite, ate like a bird when I was hungry, and was lethargic abd vomiting, and couldn't keep anything down, so one doctor finally did the CAT scan and found the craniopharyngioma tumor. I also have Panhypopituitarism, Diabetes Insipidus, Obesity, Hypothyroidism, high blood pressure, high cholesterol, and acid reflux and heartburn.
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Xarian97

1y ago

omg we had the same surgery and everything, wow I genuinely didn't think someone else had the exact same things as me..
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Ananatasha

1y ago

I found out in 2012 when I got an iron infusions and I got really weak my sodium levels were so high the doctors said that it was the first time they see a sodium level so high I was in the hospital for a week 3 days in icu because the doctors did lower my sodium but it happen so fast that they wanted to monitor me. I used to drink a 5 gallons water bottle every single day and used to pee a lot even with all that water I was dehydrated.
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rezz_berry

1y ago

is your sodium still high & did you take any meds ?
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rezz_berry

2y ago

hey yeah i did starting at age 8
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rezz_berry

2y ago

i felt very tired and lethargic and never wanted to drink water bc i had no thirst mechanism. went to the doctor and they sent me to the ER. doctors said that other cases with DI they are excessively thirsty, but with me, i wasn’t thirsty at all and i had several brain MRI so they could see if anything is abnormal with my pituitary

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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