See Alike in...

Alike App

Browser

Sugars

672d

Wow! I wondered if there really were other people with Diabetes insipidus. How were you diagnosed? Did you have MRI of your head too?!

Top reply
    • Peanut1T

      563d

      @Xarian97 that's one of the reasons I love this app. I didn't think there was anyone either. Here we can chat and share what we're going through. It's helped me a lot, knowing there are others out there with the same issues/health issues.

    • Peanut1T

      568d

      I had a CAT scan when I was 7 years old and they found the craniopharyngioma on my pituitary gland. They removed 1/2 of the benign tumor, because removing the whole tumor, would've caused me to be blind in my right eye. I had no appetite, ate like a bird when I was hungry, and was lethargic abd vomiting, and couldn't keep anything down, so one doctor finally did the CAT scan and found the craniopharyngioma tumor. I also have Panhypopituitarism, Diabetes Insipidus, Obesity, Hypothyroidism, high blood pressure, high cholesterol, and acid reflux and heartburn.

      • Xarian97

        566d

        @Peanut1T omg we had the same surgery and everything, wow I genuinely didn't think someone else had the exact same things as me..

        • Peanut1T

          563d

          @Xarian97 that's one of the reasons I love this app. I didn't think there was anyone either. Here we can chat and share what we're going through. It's helped me a lot, knowing there are others out there with the same issues/health issues.

    • Ananatasha

      650d

      I found out in 2012 when I got an iron infusions and I got really weak my sodium levels were so high the doctors said that it was the first time they see a sodium level so high I was in the hospital for a week 3 days in icu because the doctors did lower my sodium but it happen so fast that they wanted to monitor me. I used to drink a 5 gallons water bottle every single day and used to pee a lot even with all that water I was dehydrated.

      • rezz_berry

        568d

        @Ananatasha is your sodium still high & did you take any meds ?

    • rezz_berry

      667d

      hey yeah i did starting at age 8

      • rezz_berry

        667d

        @rezz_berry i felt very tired and lethargic and never wanted to drink water bc i had no thirst mechanism. went to the doctor and they sent me to the ER. doctors said that other cases with DI they are excessively thirsty, but with me, i wasn’t thirsty at all and i had several brain MRI so they could see if anything is abnormal with my pituitary

        • Sugars

          667d

          @rezz_berry that's very different from what my doctor said. He said diabetes just means excessive thirst. In one way or another, the pituitary is messed up. I'm glad you have an answer to your health.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion