Hello, I was going to put my status as a CF carrier with symptoms but they do not have that as an option. I unfortunately have some sinusitis and gastrointestinal issues that could be related to it or not (at this point there is no definitive cause, it could be one of my other conditions, just treating symptoms) and I was mostly wondering if anyone else was in the same boat? I’m curious as to what others have experienced just being a carrier!! My family thus far has no one who has had cystic fibrosis officially but many have the symptoms like upper respiratory infections, aquagenic wrinkling of the palms and such. Itd be cool to just connect to others. On top of those symptoms i have other conditions which never helps!!
How has chronic illness affected your career?
I'm wondering if I may have CF. I have had a chronic productive cough since childhood, along with frequent sinus and lung infections. Most of my doctors have assumed it is asthma and allergies, which I have been treated for, but the symptoms do not improve. I am allergic to certain molds, dust mites, and a few random plants. I have tried everything, but I have constant congestion in my lungs that I cannot cough up. I currently take Zyrtec, Symbicort, and Singulair prescribed by my doctor. I take Mucinex OTC because it has been the only thing to help at all, but it doesn't always help me even. I have also had unexplained digestive issues and severe abdominal pain off and on since childhood. Doctors blamed the pain on constipation and acid reflux, but I am now thinking it may be related. Does anyone have experience with being diagnosed in adulthood? The symptoms have been present my whole life, but they did not do genetic testing when I was born. Could they have missed it?
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)