Looking for others who are CF carriers with symptoms

Hello, I was going to put my status as a CF carrier with symptoms but they do not have that as an option. I unfortunately have some sinusitis and gastrointestinal issues that could be related to it or not (at this point there is no definitive cause, it could be one of my other conditions, just treating symptoms) and I was mostly wondering if anyone else was in the same boat? I’m curious as to what others have experienced just being a carrier!! My family thus far has no one who has had cystic fibrosis officially but many have the symptoms like upper respiratory infections, aquagenic wrinkling of the palms and such. Itd be cool to just connect to others. On top of those symptoms i have other conditions which never helps!!

Your answer

Sofia_Andrea

2y ago

Hi randochikn, I haven’t yet been dx with CF yet but am kinda in the process. I have similar symptoms to CF such as aquagenic wrinkling, cough, GI issues, short stature, sinus stuff. I’ve gone to a CF pulmonologist and he said I probably didn’t have CF since I don’t really fit the “CF patient body” I am trying to get a genetic testing for the mutations to figure this out. Any one know of a thorough CF mutation test??

Dom98

2y ago

speak to your doctors and request a sweat test. It’s how I was diagnosed (23 years ago) it’s how they confirm CF

Joy

2y ago

Hey welcome! My CF manifests with difficult of breathing, repetitive pneumonias and fatigue. There’s a wide spectrum for this disease, so many people have many different symptoms

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