See Alike in...

Alike App

Browser

randochikn

821d

Hello, I was going to put my status as a CF carrier with symptoms but they do not have that as an option. I unfortunately have some sinusitis and gastrointestinal issues that could be related to it or not (at this point there is no definitive cause, it could be one of my other conditions, just treating symptoms) and I was mostly wondering if anyone else was in the same boat? I’m curious as to what others have experienced just being a carrier!! My family thus far has no one who has had cystic fibrosis officially but many have the symptoms like upper respiratory infections, aquagenic wrinkling of the palms and such. Itd be cool to just connect to others. On top of those symptoms i have other conditions which never helps!!

Top reply
    • Dom98

      732d

      @Sofia_Andrea speak to your doctors and request a sweat test. It’s how I was diagnosed (23 years ago) it’s how they confirm CF

    • Sofia_Andrea

      786d

      Hi randochikn, I haven’t yet been dx with CF yet but am kinda in the process. I have similar symptoms to CF such as aquagenic wrinkling, cough, GI issues, short stature, sinus stuff. I’ve gone to a CF pulmonologist and he said I probably didn’t have CF since I don’t really fit the “CF patient body” I am trying to get a genetic testing for the mutations to figure this out. Any one know of a thorough CF mutation test??

      • Dom98

        732d

        @Sofia_Andrea speak to your doctors and request a sweat test. It’s how I was diagnosed (23 years ago) it’s how they confirm CF

    • Joy

      817d

      Hey welcome! My CF manifests with difficult of breathing, repetitive pneumonias and fatigue. There’s a wide spectrum for this disease, so many people have many different symptoms

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion