Does anyone with cerebral palsy have bladder/ovary problems? is this common or just me?
Looking for other folks with CP especially anyone over the hill
Hey ambulatory CP peeps with minimal upper body spasticity... I had a negative experience losing my balance while carrying some hot food across an open space in my house yesterday. It was really disappointing, I was looking forward to the meal and it made a huge mess and ruined my dinner. I had more leftovers tonight and I really didn't want it to happen again, so I thought about some strategies for carrying hot dishes on bad balance days... 1. If your food is in a bowl, place it on a plate and carry the plate in one hand, supporting yourself on walls and furniture with the other hand on the way to your seat. 2. Carry your dish in phases, landing periodically on surfaces like tables, take a minute to regroup your balance at each little stop. 3. Prep your food in a container with a lid and use the lid securely while you're carrying. Added bonus: keeps your food warmer! 4. Use a walker with a platform seat to caddy your food close to your seat. Alternately get a small cart like a bar cart and use it like a TV table. 5. Use silicone lids to cover your plates and bowls, or hold them against the bottom so the heat doesn't make your spasticity worse. 6. Carry your food with a potholder on the bottom so the heat doesn't throw you off. Obviously every CP babe is different but these have either helped me or seem like they might if I had the adaptive devices. Thoughts?
Hello I'm Ariishiya, I have right hemiplegic cerebral palsy. Due to some life situations I haven't done much physical therapy for a couple years and I'm struggling to get back into it, I really want to better myself.
Does anyone else with diplegia experience HORRIBLE pain in the soles (all across the bottoms of both feet) and insides (like the soft tissue inside) of their feet when they spend too much time on their feet past their limit? It is a very different kind of pain from muscle spasms or cramps. My feet feel like the soles should be bruised black and blue, the pain is 15/10 and hard to take a step or put any weight on them at all (even the fraction of weight on them sitting with my feet solidly touching the ground is too much). Weirdly, my CP is worst in my left leg but this pain is equal in both legs and is constant when I have any weight on my legs at all - it is relieved only after a full night of rest,sometimes two nights. It doesn't feel like muscle cramps/muscle pain at all, it literally feels like a bruise all the way through the tissue of my foot that I try to walk and put pressure on (though there is never any visible damage). My doctors seem to refuse to believe it could be anything besides "muscle spasms". I wonder if it may be a whole different condition.
how do you deal with pain? I'm on baclofen, and see some results from it but not what I'd like to see. the next step is Botox, but they'd have to knock me out for that 😂, I hate needles, and it would all be done in my lower back.
How does Cerebral Palsy affect you?
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Anxiety (Including GAD)