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NinjaP

297d

I'm awaiting an appointment with neurology which could take months or even over a year, in the meantime the list of chronic illness symptoms is increasing - although the severity of some symptoms seems to fluctuate - and about half way around a museum exhibit I needed to use one of the portable chairs they provide due to pain in my feet and legs. I felt emotional about it afterwards, as I accepted I couldn't make it around the exhibit and very much wanted to, but it was the first time I've had to use a support like that and it feels like a turning point with regards to my health. I've got mixed feelings about it, but a friend pointed out that I would be (and have been!) so happy for another friend if they were able to use an accommodation which made something easier/possible, so I'm trying really hard to feel positive about that aspect, while also allowing myself to feel sad about my mobility and various other things becoming more challenging.

Top reply
    • LilyUnicorn

      297d

      @Lucia_Marie You know it's OK to not make it all the way around. You got to sit and absorb the beauty of the museum. Unlike me who yesterday got light headed and had to sit on the floor of Walmart. Go ahead and giggle it's OK. I'm sure I looked silly a Great Grandmother sitting on the floor of Walmart because she was lightheaded. Just doing what the cardiologist said sit on the ground.

    • NinjaP

      297d

      *couldn't make it around without the support

      • Lucia_Marie

        297d

        @NinjaP I I had a meltdown when I realized I couldn’t walk w/o a cane. It’s a realization nobody wants but what I did got on on the website glamour canes & bought ones with bling in every color to match my outfits. It really sucks but now I just do what I gotta do so I can walk. Believe it or not I joined a gym & got my legs moving & I feel better so exercise does help. I have CRPS Complex Regional Pain Syndrome in my entire right leg and foot & I also got drop foot because of my injury that started this nightmare. I wish u luck ur in my prayers and just know ur not alone.

        • LilyUnicorn

          297d

          @Lucia_Marie You know it's OK to not make it all the way around. You got to sit and absorb the beauty of the museum. Unlike me who yesterday got light headed and had to sit on the floor of Walmart. Go ahead and giggle it's OK. I'm sure I looked silly a Great Grandmother sitting on the floor of Walmart because she was lightheaded. Just doing what the cardiologist said sit on the ground.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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