See Alike in...

Alike App

Browser

LixiKat

740d

I wish someone would tell me if I am crazy or not Iv been using a wheelchair to help prevent chronic pain from being worse it’s helped a lot and without it I suffer from severe pain to the point I could hardly walk to stand but I fight through it because the people around me think I am crazy or overthinking my condition what do I do

Top reply
    • LixiKat

      733d

      @Shawna51 your boyfriend is a jerk if he can’t understand and sympathize or even try why he isn’t for you You deserve someone who’s understanding and caring

    • Shawna51

      734d

      oh I understand hun I live it and I'm an empath too so I have a hard time understanding why people can't be more compassionate and open minded but I just wish I guess that I could not worry so much about what they say.and I was talking about myself also.my own boyfriend calls me lazy when I can't get up to do things so I do know the hurt. I'm sorry if I came off that way to you.

      • LixiKat

        733d

        @Shawna51 your boyfriend is a jerk if he can’t understand and sympathize or even try why he isn’t for you You deserve someone who’s understanding and caring

    • Shawna51

      735d

      We all just need to stop worrying about what other people say because the ones in my life that don't try and understand my situation are the ones that I took care of hand over foot .I took care of everybody and now I need the help and there gone or unresponsive and for me it's very hard to ask for help because I was always the strong one that took care of everybody else.tgey just need to step up!

      • LixiKat

        734d

        @Shawna51 that’s easier said then done I mean obviously we can’t expect others to be there for us as we have been there for them but it hurts to no when those people don’t it’s human nature to feel when someone makes a comment about you negative when we are new at the change

    • strawberrydog

      738d

      You don’t ever have to justify why you need a wheelchair or any mobility aid. I also had this issue when I was using my cane, and one small comment made me stop using it. I’m slowly starting to warm up to it again but one thing it made me realize was regardless of what people thought of me, I needed it and walking without it would cause pain. I looked fine but every day was hell. If people around you think you’re crazy, they should definitely try walking around in your shoes for a day and see how it feels. I’m angry that people are still so ableist and demand us to tell them why we need something. You are allowed to use whatever mobility aid if it helps you. You don’t need other peoples opinions especially if they say you don’t need something that helps you. As long as you know what you need, you need it :)

      • LixiKat

        734d

        @strawberrydog this is so beautiful 💕 thank you for replying with such a great message it makes me Feel strong and to not let anyone stop me

    • xxARYN420xx

      738d

      Man I'm 36 and my entire body is in attack mode ... all my organs have damage ... all my illnesses are also invisible & the amount of pain I'm in is always kept secret even from my spouse... and they sometimes have to physically get My body out of bed as I cry..... but in public I act like I'm fine ... just quirky ol me ...

    • Belugabear

      739d

      You gotta do what you gotta do! I’m kind of jealous, some days I could really use one. The only thing to be careful about is that sometimes movement does help pain, even though it feels worse in the moment it helps overall. I usually flare if I move too much or not enough. But maybe you’re someone who flared with any movement at all, and in that case a wheelchair is great for you!! But no matter what you’re definitely not crazy. There’s nothing wrong with doing what you need to in order to get through the day

      • LixiKat

        739d

        @Belugabear it’s not the movement it’s the amount of walking and bending some days are good but when I am not home and needing to do a lot my chair helps me a lot and being young people judge so easily thinking we are young we need to do this or that but I no my body it’s not normal for knees to pop out of place when walking or feeling fatigue and dizzy getting vertigo when walking experiencing back and leg pain that I no it isn’t normal

        • Belugabear

          739d

          @LixiKat it sounds like you really need it and there’s no shame in that!

    • KitKat1450

      739d

      Do what you need to do to get thru the day. I have handicap sign and on bad days I use it I can actually make the drive home. I don’t have a wheelchair so I get looks a lot and a lot of times I don’t want to deal with that so I don’t use it because I feel self conscious but at the same time those people aren’t with you all day and have no idea how bad the pain is or how hard it is to manage so do what’s best. On good days I don’t use it. Honestly I’m confused about what my body can handle on a given day too so honestly others are probably more so because they have no idea what’s going on in my body and how much I can handle. If using a wheelchair or assistive device is helping you be more functional, then do it. You aren’t crazy, sounds like you’re trying to take care of yourself and doing your best. The judgement from others really sucks and I’m sorry you’re struggling with that.

      • LixiKat

        739d

        @KitKat1450 thank you very much 💕 I really needed to read that

    • Shawna51

      740d

      I don't have much of a support team either some of our diseases are invisible. People look at us and because we look normal they either forget or think we aren't sick and it's tuff because we feel this pain and you just want someone to I understand. And I do understand but you may want to talk to your doc about the chair cause I know with me if I don't walk I get more pain from getting stiff but I guess it depends on what's causing the pain.

      • LixiKat

        739d

        @Shawna51 yea very true it’s so hard for us and even when fighting through the pain it makes it worse

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion