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hello.its.me

259d

got told by physio today (after 5years if looking for answers) that the reason for my severe pain is because I have hypermobility. I have since realised that I also have mild skin hyperextension, unexplained stretch mark, atrophic scarring and papules on my heels. could this be hEDS? I've looked at the checklist and I think I meet all the criteria

    • goblin49

      259d

      If you have looked at the checklist and match the criteria (which based on your description it does sound like you do), this is the current way hEDS is diagnosed so it would suggest you have it. However, a doctor is best to make a formal diagnosis and could help you rule out other types of EDS. I personally got my hEDS diagnosis from a geneticist, but others may be willing to do the job for you. A diagnosis may feel validating, and personally for me it has really helped me get the help I need for my joints. But it is just a label, so do with that what you will!

      • hello.its.me

        259d

        @goblin49 I am planning to speak to my doctor tomorrow about getting an appointment to discuss all possibilities but it usually helps to go in with an idea o what going in to help things! I have found that I have gotten more support for other thing after diagnosis so I'm hoping this will help me get the support I need. Thanks!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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