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hello.its.me

89d

I have hypermobility which is suspected to be caused by something else, possibly hEDS, but I've just been told by a doctor that the area in I'm doesn't receive funding for hypermobilty secondary care, so they can't test for EDS and the only option if you have the symptoms is more physio. I'm in so much pain and physio doesn't help, what do I do now?

    • crustycrustacean

      89d

      I'm in a similar situation. Here there is only one geneticist in the state that tests for heds. I've been told I'm on the waiting list but it's years out. Are there any hypermobility researchers in your area?

      • hello.its.me

        88d

        @crustycrustacean I'm in the UK so it sa bit different. NHS cornwall just don't get funding for it and I'm a student so there no way I can go private

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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