Need advice for hypermobility pain and lack of testing options

hello.its.me

149d

I have hypermobility which is suspected to be caused by something else, possibly hEDS, but I've just been told by a doctor that the area in I'm doesn't receive funding for hypermobilty secondary care, so they can't test for EDS and the only option if you have the symptoms is more physio. I'm in so much pain and physio doesn't help, what do I do now?

Hypermobility Syndromes

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crustycrustacean

149d

I'm in a similar situation. Here there is only one geneticist in the state that tests for heds. I've been told I'm on the waiting list but it's years out. Are there any hypermobility researchers in your area?

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- hello.its.me
  
  149d
  
  @crustycrustacean I'm in the UK so it sa bit different. NHS cornwall just don't get funding for it and I'm a student so there no way I can go private
  
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Need advice for hypermobility pain and lack of testing options

hello.its.me

crustycrustacean

hello.its.me

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Need advice for hypermobility pain and lack of testing options

hello.its.me

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hello.its.me

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