See Alike in...

Alike App

Browser

LeonardMartin

253d

I have multiple symptoms of hEDS, including hypermobility, joint instability, and chronic pain, but my after my rheumatologist told me I was hypermobile, he told me not to come back to him unless I had asymptomatic of rheumatoid arthritis. he also told me to take more Tylenol because it doesn't affect the liver(which I know is not correct). How should I move forward? I understand I probably need to find a new rheumatologist, but I'm not sure how to get more adequate testing done.

    • LeonardMartin

      253d

      Just looked at my record from the appointment, and he didn't even put the hypermobility in my record. On top of that, he put my beighton as a 2, when I know for a fact that it's at least a 6

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Based on the experiences shared in the context, it might be beneficial to seek a second opinion from another rheumatologist or a geneticist. Geneticists can look for markers in your DNA that could indicate hEDS. It's also important to find healthcare professionals who understand hypermobility and its associated symptoms.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion