I have multiple symptoms of hEDS, including hypermobility, joint instability, and chronic pain, but my after my rheumatologist told me I was hypermobile, he told me not to come back to him unless I had asymptomatic of rheumatoid arthritis. he also told me to take more Tylenol because it doesn't affect the liver(which I know is not correct). How should I move forward? I understand I probably need to find a new rheumatologist, but I'm not sure how to get more adequate testing done.
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Based on the experiences shared in the context, it might be beneficial to seek a second opinion from another rheumatologist or a geneticist. Geneticists can look for markers in your DNA that could indicate hEDS. It's also important to find healthcare professionals who understand hypermobility and its associated symptoms.
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