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I have multiple symptoms of hEDS (loose joints, easy bruising, slow healing etc), but also a lot that don't fit the diagnostic criteria (not all my joints are hypermobile, only my knees, ankles, elbows and wrists, my spine especially has reduced range of motion due to lumbar stenosis and scoliosis, my skin isn't stretchy,...). Because of this I therefore have no official diagnosis for whatever is wrong with my joints/causing me chronic pain which means doctors never take me seriously and just tell me to rest and take ibuprofen and I can't access any support for it. Its also making me almost gaslight myself into thinking maybe there isn't anything wrong with me and maybe I'm just being dramatic. Does anyone have any resources on where I can go from here?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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It's important to seek a second opinion from a medical professional, such as a rheumatologist or geneticist, who specializes in joint disorders and connective tissue conditions. They can help determine if you have hEDS or another related condition and provide appropriate guidance for pain management and support.

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