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I was on benlysta for 2 yrs but rheumatologist left the practice after I had a port put in and before starting infusions. I saw a new Dr but after a 5 min conversation and 1 blood test he's told I don't have lupus... has anyone experienced this before?
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Systemic Lupus Erythematosus (SLE)
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687d
Yes me!
688d
The Avise test is ana and then the anti-dsDNA. I had a negative ana but a very high anti-dsDNA. The Avise test will say you are negative for lupus if the ana is negative. It is not reliable for diagnostic purposes IMO.
I’m sorry that happened! That hasn’t personally happened to me, but I’ve heard stories about this happening. I would ask to see another physician. Do you know what blood test they ran?
@Jiggs the avise blood test
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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