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moose1013

690d

I was on benlysta for 2 yrs but rheumatologist left the practice after I had a port put in and before starting infusions. I saw a new Dr but after a 5 min conversation and 1 blood test he's told I don't have lupus... has anyone experienced this before?

Top reply
    • Anigma

      687d

      Yes me!

    • Anigma

      687d

      Yes me!

    • StickyCJ

      688d

      The Avise test is ana and then the anti-dsDNA. I had a negative ana but a very high anti-dsDNA. The Avise test will say you are negative for lupus if the ana is negative. It is not reliable for diagnostic purposes IMO.

    • Jiggs

      690d

      I’m sorry that happened! That hasn’t personally happened to me, but I’ve heard stories about this happening. I would ask to see another physician. Do you know what blood test they ran?

      • moose1013

        690d

        @Jiggs the avise blood test

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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