Getting a Full Medical Diagnosis After a Muscle Biopsy

How do I go about getting fully diagnosed even after a muscle biopsy?

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Jay5

2y ago

Genetic testing

Chronic_Musings

2y ago

It seems the only geneticists around here are for children

Jay5

2y ago

You might have to travel, I know it sucks but VCU in Richmond, Virginia is a great place for Muscular Dystrophy under Dr. Nick Johnson (my doctor) this is his speciality and has a full team of doctors who specialize in DM, so my cardiologist, pulmonologist, speech pathologist, etc. all know how to deal with my condition. I know Johns Hopkins In Maryland is also very good in terms of Muscular Dystrophy

Chronic_Musings

2y ago

I don't have income and have to use my states Medicaid. I've been denied disability for 8 years

NotVeryBendable

2y ago

I’m 21 years old and I still don’t have a diagnosis after biopsies and genetic testing. It’s so frustrating!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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