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leafeye

716d

I've had worsening symptoms my entire life, but haven't been able to see a genetic doctor yet bc the clinic she works at here doesn't accept patients with a history of addiction problems. my doctor diagnosed me tentatively with EDS but she's worried I might have marfans syndrome bc of my height.

Top reply
    • Old.Greg

      714d

      Mine was diagnosed in the rheumatology clinic at children's hospital, not sure where you live or if you have access to a rheumatologist but sometimes they do refer adults over to a children's hospital because of how many things they specialize in.

    • Old.Greg

      714d

      Mine was diagnosed in the rheumatology clinic at children's hospital, not sure where you live or if you have access to a rheumatologist but sometimes they do refer adults over to a children's hospital because of how many things they specialize in.

    • SlothFan26

      715d

      Are you able to do genetic testing? I did mine online

      • leafeye

        715d

        @SlothFan26 no, I have no income and unstable housing

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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