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leafeye's Post
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leafeye
2y ago
Struggling with Undiagnosed Genetic Disorder
I've had worsening symptoms my entire life, but haven't been able to see a genetic doctor yet bc the clinic she works at here doesn't accept patients with a history of addiction problems. my doctor diagnosed me tentatively with EDS but she's worried I might have marfans syndrome bc of my height.
Your answer
Old.Greg
2y ago
Mine was diagnosed in the rheumatology clinic at children's hospital, not sure where you live or if you have access to a rheumatologist but sometimes they do refer adults over to a children's hospital because of how many things they specialize in.
SlothFan26
2y ago
Are you able to do genetic testing? I did mine online
leafeye
2y ago
no, I have no income and unstable housing
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