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782d

so, my primary doctor thinks I have some form of muscluar dystrophy. for background, i was very athletic, in basketball, track, and show choir until the age of 15. around that age i started to deal with a lot of fatigue, joint pain, and muscle weakness. my muscles eventually atrophied, and they havent recovered since even with physical therapy. i was diagnosed with fibromyalgia, but I don't feel like that was an accurate diagnosis. i dont relate to most othe the symptopms. i regularly have a low creatine level in bloodwork, so all I can do at this point is wait for a specialist to get back with me. im 22, and whatever is wrong with me is steadily getting worse. has anyone else went through anything similar? i wasnt the strongest kid growing up, but i didnt have many noticeable problems until the age of 15.

Top reply
    • 1ofmany

      712d

      Rather than tell a long story based on my symptoms and genetic testing was finally what led me to a diagnosis it was a very long journey just thought I'd tell you what ended it l have lgmd2h

    • 1ofmany

      712d

      Rather than tell a long story based on my symptoms and genetic testing was finally what led me to a diagnosis it was a very long journey just thought I'd tell you what ended it l have lgmd2h

    • Luluu.xo

      732d

      Look up a MDA clinic near you & ask your Dr fora referral for that place. that will get you headed in the right direction

    • Luluu.xo

      732d

      I’d suggest you to get a muscle biopsy, i heard it’s painful but this will you the most accurate diagnosis aside from bloodwork . I heard blood work will give you a diagnosis but it might not be 100 spot on.

    • Anne8769

      764d

      You might wanna look up the nearest MDA, Muscular Dystrophy Association cause they'll send you to just the right Doctors for a diagnosis 🙂

    • Colours

      778d

      I think that’s about the same age as I was when I started really showing something wasn’t right physically.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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