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703d
so, my primary doctor thinks I have some form of muscluar dystrophy. for background, i was very athletic, in basketball, track, and show choir until the age of 15. around that age i started to deal with a lot of fatigue, joint pain, and muscle weakness. my muscles eventually atrophied, and they havent recovered since even with physical therapy. i was diagnosed with fibromyalgia, but I don't feel like that was an accurate diagnosis. i dont relate to most othe the symptopms. i regularly have a low creatine level in bloodwork, so all I can do at this point is wait for a specialist to get back with me. im 22, and whatever is wrong with me is steadily getting worse. has anyone else went through anything similar? i wasnt the strongest kid growing up, but i didnt have many noticeable problems until the age of 15.
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Muscular Dystrophies (MD) & Other Myopathies
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633d
Rather than tell a long story based on my symptoms and genetic testing was finally what led me to a diagnosis it was a very long journey just thought I'd tell you what ended it l have lgmd2h
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653d
Look up a MDA clinic near you & ask your Dr fora referral for that place. that will get you headed in the right direction
I’d suggest you to get a muscle biopsy, i heard it’s painful but this will you the most accurate diagnosis aside from bloodwork . I heard blood work will give you a diagnosis but it might not be 100 spot on.
685d
You might wanna look up the nearest MDA, Muscular Dystrophy Association cause they'll send you to just the right Doctors for a diagnosis 🙂
699d
I think that’s about the same age as I was when I started really showing something wasn’t right physically.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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