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Zedgirl

Updated 11mo ago

Looking for others with EDS

Hello I have hEDS, which do you have?

Can you help? Connect today

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spoonii

2y

i also have hEDS.
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Zedgirl

2y

Cool ☺️ This might be a funny question 😅 So are you a a random spawn of EDS or does it run in the family? I am currently trying to figure this out myself and I’ve actually found that it probably runs in the family. What about you? 😊
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spoonii

2y

for me it was totally random. I’ve been doing some research too trying to learn it for myself. But i’m the only one in my family (that i know of lol) that has this. And feel free to ask any questions at all! I might not know everything because i am newly diagnosed but i’ll answer as many as i can☺️
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Jadie

2y

Ive also got hEDS and some comorbid issues.
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Hammy.Bug

2y

hEDS!
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Allie_May

2y

hEDS with co morbiditys
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Elisa

2y

hEDS w/ comorbities as well.
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TinyTrooper

2y

Diagnosed hEDS, but my geneticist is ruling out other forms as vascular has been found in my family. I have the comorbidies as well.
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Juzels

2y

hEDS!
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Lyns

2y

@spoonii how was the diagnosis process if no one else in your family has it?
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spoonii

2y

@lyns It was really quick and easy. He just tested my flexibility and asked me some questions about GI issues and if i bruise easily and that was it. I think it might be different from other people but my doctor was sure i had it just from a few simple tests that were completed in like 5 minutes.
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Bijoux_bean22

2y

I think I am a mutant of hyper mobility on my mum’s side. I too have hEDS. Not sure if anyone else in my family would qualify though.
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Morgs

2y

hEDS too
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Morgs

2y

I have comorbidities too
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yarnbee

2y

hEDS and the whole swarm of comorbidities

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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