Severe hypermobile with POTS

I'm hypermobile type too! And I'm not sure if I have POTS bc I have not yet taken a tilt table test, but I'm on propranolol and it really helps haha

Waiting on my genetics results, but almost certainly hypermobile type! Also with dysautonomia, though still working with a cardiologist to figure out a diagnosis.

well they said hypermobile, took a genetic test and had two variants of “unknown significance”, these two being spondylodysplastic and vascular type. They dont seem worried, but my mom has a grandmother who had vascular dementia and mini strokes so i am cautious about it knowing that it’s possible i am at risk.

I have confirmed cEDS (COL5A1) and my geneticist thinks I might have hEDS too. 🥲

My doctors are mostly on the fence about whether I have hypermobile or vascular. My symptoms aren't clearly one or the other, and I had a brain aneurysm when I was 19. They pretty much just tell me to "not worry about which subtype it is because the treatment is the same." Which while I understand, it's still frustrating

I'm diagnosed with hEDS, but gene results had "variants of unknown significance" for KEDS and BCS. It makes me wonder what science will say about these things years down the road!! 🤔

Waiting on my testing to find out! I have hyper mobility and skin issues like thin and translucent skin with easy bruising. I wonder about Classical-like type

Type 1 ❤️ with chiari and heart issues

hEDS for me, my rheumatologist said you can’t have multiple kinds, which I don’t believe. Though it’s difficult to know which doctor is right when every single one has different “facts” about it. I was told I couldn’t get diagnosed without seeing a geneticist to rule out other forms of EDS. All I know for certain is that I’m hypermobile.

Classic like

hEDS. i had genetic testing done & it said “variant of unknown significance” for the ADAMTS2 gene that is associated with the dermatosparaxis type.