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kaleiceia

1y ago

Seeking advice on hEDS diagnosis and symptoms

does anyone here have diagnosed hEDS? I suspect that I have it, especially now after being diagnosed with autism because I read that autistic folks have a much higher likelihood of having hEDS, too. can you tell me what it's like, like what symptoms you have?? I think I have maybe all but one or two of the hypermobile-type criterion, pretty much everything but the actual hypermobility.

Your answer

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AspieWriter6390

1y ago

I’m getting tested for it next month.
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Teal100

1y ago

I have heds, have you had a look at the diagnostic criteria? And the behiton scale. I'm quite sever for those with heds due to multiple co occurring but would be happy to answer questions
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moonwxtcher

1y ago

i’m in the same situation as op, could i also ask a question abt eds? how do i go in to the doctor and bring up that topic or those symptoms i have many but there’s not outwardly severe so i’m 21 just now figuring it out

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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