kaleiceia

309d

does anyone here have diagnosed hEDS? I suspect that I have it, especially now after being diagnosed with autism because I read that autistic folks have a much higher likelihood of having hEDS, too. can you tell me what it's like, like what symptoms you have?? I think I have maybe all but one or two of the hypermobile-type criterion, pretty much everything but the actual hypermobility.

advertisement

Top reply
    • Teal100

      309d

      I have heds, have you had a look at the diagnostic criteria? And the behiton scale. I'm quite sever for those with heds due to multiple co occurring but would be happy to answer questions

    • Teal100

      309d

      I have heds, have you had a look at the diagnostic criteria? And the behiton scale. I'm quite sever for those with heds due to multiple co occurring but would be happy to answer questions

      • moonwxtcher

        307d

        @Teal100 i’m in the same situation as op, could i also ask a question abt eds? how do i go in to the doctor and bring up that topic or those symptoms i have many but there’s not outwardly severe so i’m 21 just now figuring it out

        • Teal100

          307d

          @moonwxtcher write down all the things your experiencing and then ask for a rhymotology referal (if this is most relevant to your symptoms) is generally the first step v

    • AspieWriter6390

      307d

      I’m getting tested for it next month.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion