What Does Fibro Pain Feel Like?

Deep burning muscle pain with pinching at the joints. My pain moves alot and makes explaining it to Dr's difficult. My shoulder blades and neck muscles feel like they are too short almost constantly and im always moving because I can't get or stay comfortable. And I miss jeans. Real pants hurt my skin. Flare ups feel like being hit by a semi with a fresh sunburn.

My pain is similar. Dull and achey and very prominent in all my joints. I thought I was always sick with a cold/flu because my body would feel similarly to that and when I touched anything I was really sensitive. Like even grasping a pen would hurt my knuckles. I would feel too weak to get out of bed. I have had a hard time keeping jobs because I call in alot. I just got diagnosed in January 2022 and I am trying to figure out how to explain and ask for accomodations. I was so conditioned to explain my issues as feeling sick as opposed to feeling pain, that I still struggle with saying it. And accepting it.

Exactly how it feels. Sometimes it's so bad the ache turns into burning. I definitely feel the burning in my muscles. I will suggest if ANYONE has fibro, to also ask about hypermobility syndrome. They can feel quite similar and my joints are always giving me problem. It's a good thing to check for if you have similar pain to arthritis.

Yes!!! Perfect description of the description everyone else thinks were crazy!!! It’s almost like you question yourself,”am I really in this much pain all the time!!???”

that's EXACTLY how it feels for me. i feel like i need to crack my ankles a lot of the time (a lot of fibro pains in my achilles) or my wrists. fibro is considered a condition where normal muscle strain is perceived by the brain as abnormal, so muscle/joint pain would make sense for fibro! if you have access to this via insurance or through a provider, i suggest checking if you have a mutated MTHFR gene— more and more people diagnosed with fibro have this mutation, which essentially makes your body resistant to metabolizing folic acid, and produces homocysteine, which causes those same sorts of pain. since i have a mutated MTHFR gene, i take supplements to help make up for the folic acid my body can't metabolize, and it does significantly help with the pain! i hope you can figure things out!!

Do you stretch every day? Have you tried yoga?

OMG I never thought of explaining it as the need to stretch all the time. It's should a good way of explaining it!

That's what I'm on and he helps a lot.

I'm a 34F and I got diagnosed back in 2018. I had severe pain all over my body, couldn't move or be touched. Doctor did a bunch of blood work and tests and it came back with positive RA and he also said it sounds like Fibro. I was given a medicine to try but then got pregnant and couldn't take it. Fast forward to today, I am on two medications (Meloxicam and Gabapentin) and when I forget a dose or whatnot, I hurt all over, just pain and can't get comfortable because everything hurts.

I am 27f, and similar to you. How I characterize my pain is muscle pain surrounding the joints. I am always trying to stretch something. I just recently got diagnosed but pretty sure I've had fibro for years. I had chronic migraine, daily headache, and neck tension starting in 2016 and I'm thinking a lot of this started then too.

That is how it started for me. Esp that feeling of needing to stretch 24/7. It started in my joints. I can't remember how old I was when I started noticing it all the time, but I wanna say I was around your age. I'm now 35 and have pain in my muscles and nerves 24/7. I just got the diagnosis of fibro a few months ago, so I never had direct answers until then. I feel like I could have treated it better if I'd had the diagnosis sooner. But I'm still working to find what will help 😊