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cannoli

798d

I (25f) am curious what fibro pain feels like for other people. For me, I feel a dull ache through nearly my whole body - mostly my joints but I can’t really tell if it’s muscle or bone pain (which I guess makes sense for FM). Almost like I need to pop or stretch everything all the time.

Top reply
    • Aimless

      794d

      Deep burning muscle pain with pinching at the joints. My pain moves alot and makes explaining it to Dr's difficult. My shoulder blades and neck muscles feel like they are too short almost constantly and im always moving because I can't get or stay comfortable. And I miss jeans. Real pants hurt my skin. Flare ups feel like being hit by a semi with a fresh sunburn.

    • Aimless

      794d

      Deep burning muscle pain with pinching at the joints. My pain moves alot and makes explaining it to Dr's difficult. My shoulder blades and neck muscles feel like they are too short almost constantly and im always moving because I can't get or stay comfortable. And I miss jeans. Real pants hurt my skin. Flare ups feel like being hit by a semi with a fresh sunburn.

    • VJay

      795d

      My pain is similar. Dull and achey and very prominent in all my joints. I thought I was always sick with a cold/flu because my body would feel similarly to that and when I touched anything I was really sensitive. Like even grasping a pen would hurt my knuckles. I would feel too weak to get out of bed. I have had a hard time keeping jobs because I call in alot. I just got diagnosed in January 2022 and I am trying to figure out how to explain and ask for accomodations. I was so conditioned to explain my issues as feeling sick as opposed to feeling pain, that I still struggle with saying it. And accepting it.

    • SadMom95

      795d

      Exactly how it feels. Sometimes it's so bad the ache turns into burning. I definitely feel the burning in my muscles. I will suggest if ANYONE has fibro, to also ask about hypermobility syndrome. They can feel quite similar and my joints are always giving me problem. It's a good thing to check for if you have similar pain to arthritis.

    • SleepyBean

      795d

      This is an amazing description. If I'm not stretching and popping my joints constantly, I'm in even worse pain (though idk if that's mentally or what). My pain is like what you described, but I also get sharp pains in my joints when I have a flare up. Usually in my right shoulder and left hip, though it can happen in any joint. Also when I get too sleep deprived, I start to develop sensitive skin on my arms that hurts like a sunburn. But the ache you describe is what bugs me most often. Got diagnosed in 2020 because I kept failing the covid screenings for always answering yes to questions about pain and fatigue lmao. Was complaining about my symptoms for years, but until then it had been consistently brushed off as college kid burnout 🙄

      • Ladybird54

        795d

        @SleepyBean have you been tested for lupus. Sensitivity to the Sun is one of the symptoms of the lupus. I have fibromyalgia and lupus

      • Chesbro99

        795d

        @SleepyBean I relate to all of that. I always have to say no symptoms out of the normal. I'm glad someone finally listened to you

    • JamesJC

      795d

      Yes!!! Perfect description of the description everyone else thinks were crazy!!! It’s almost like you question yourself,”am I really in this much pain all the time!!???”

    • bongmaster

      796d

      that's EXACTLY how it feels for me. i feel like i need to crack my ankles a lot of the time (a lot of fibro pains in my achilles) or my wrists. fibro is considered a condition where normal muscle strain is perceived by the brain as abnormal, so muscle/joint pain would make sense for fibro! if you have access to this via insurance or through a provider, i suggest checking if you have a mutated MTHFR gene— more and more people diagnosed with fibro have this mutation, which essentially makes your body resistant to metabolizing folic acid, and produces homocysteine, which causes those same sorts of pain. since i have a mutated MTHFR gene, i take supplements to help make up for the folic acid my body can't metabolize, and it does significantly help with the pain! i hope you can figure things out!!

    • Fully.Healed

      798d

      Do you stretch every day? Have you tried yoga?

    • Chesbro99

      798d

      OMG I never thought of explaining it as the need to stretch all the time. It's should a good way of explaining it!

    • Chesbro99

      798d

      That's what I'm on and he helps a lot.

    • MommaBear6

      798d

      I'm a 34F and I got diagnosed back in 2018. I had severe pain all over my body, couldn't move or be touched. Doctor did a bunch of blood work and tests and it came back with positive RA and he also said it sounds like Fibro. I was given a medicine to try but then got pregnant and couldn't take it. Fast forward to today, I am on two medications (Meloxicam and Gabapentin) and when I forget a dose or whatnot, I hurt all over, just pain and can't get comfortable because everything hurts.

    • ScientistInPain

      798d

      I am 27f, and similar to you. How I characterize my pain is muscle pain surrounding the joints. I am always trying to stretch something. I just recently got diagnosed but pretty sure I've had fibro for years. I had chronic migraine, daily headache, and neck tension starting in 2016 and I'm thinking a lot of this started then too.

    • picklepuddles

      798d

      That is how it started for me. Esp that feeling of needing to stretch 24/7. It started in my joints. I can't remember how old I was when I started noticing it all the time, but I wanna say I was around your age. I'm now 35 and have pain in my muscles and nerves 24/7. I just got the diagnosis of fibro a few months ago, so I never had direct answers until then. I feel like I could have treated it better if I'd had the diagnosis sooner. But I'm still working to find what will help 😊

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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