Explaining Fibromyalgia to Friends

Not sure where I saw this but someone compared it to feeling like someone had a voodoo doll on them. Being poked and stabbed randomly. I have been experiencing this lately.

I say it's like a bad flu but without respiratory symptoms

This isn’t a super complex answer, but for whatever reason before I was diagnosed we started calling flares “bad bones days” because I would tell him that not just my joints but my bones themselves hurt. Maybe it’s an oversimplification but I think that’s part of the joke. It helps me to try and stay lighthearted about things if I can. Good luck, I wish you few bad bones days 💕

I explain the pain part of it like being sore after working out except add nerve pain, multiply it by a few times and then put it everywhere all the time. as for the fog and fatigue, I explain that as imagine you felt like how you do right before you go to bed, except all the time. hope this helps! good luck soldier <3

I explain it as feeling like I have the flu even though I’m not sick and specifically the brain fog I explain it as feeling like my brain is buffering like a computer unable to open a file I know the memory is there I just can’t access it and for fatigue I explain I get tired easily because my batteries fully charged is one aaa battery and healthy people function on multiple 9v batteries. And that my battery doesn’t charge as quickly or hold a charge as long.

If you look up the spoon theory sometimes that helps with explaining the level of energy you have. I used to sometimes explain how achey/tired they feel with a bad flu is how achey/tired I feel on a good day. Our normal is just different

i feel drained, almost like i got beat up recently, exhausted, and incapable of things that healthy people even decades older than me can do with ease because it hurts so badly

I say it feels like my body has been lit on fire as I have horrible nerve pain with mine

Falling apart